Strange emotions

Don't apologise for reaching out Lily2021.  What we have gone through is not easy to deal with or to forget.  To some extent I feel like it will always be on our minds.  Keep posting whenever you need to.    Try and spoil yourself with something nice tonight.  

Hope you feel better by tomorrow. Sending hugs xx

Totally agree I've had my surgery on number 12 of pacilitaxel on Wednesday my last chemo I still have 14 herceptin injections of 18 to go every 3 weekly plus 1 week of radiotherapy to go then tamoxifen for 5 years but I have had days of tears I'm sure we all have had them keep posting even if it's just to rant once you have had cancer it changes your life completely I think mine was found early all taken out no spread to the nodes as it was HER+ I had to have the lot I know it's gone but I still worry like everyone else does sensing lots of love keep going you are stronger than you think lots of love xxx

Thank you feeling a bit better . Some meditation has helped.  Look after yourself x

Lily x

Thank you  went for a walk and  just trying to accept each day as it comes 

Look after yourself x

Lily x

Thanks for posting this. I’m only 2 weeks after finishing RT, and it sounds like we are similar, positive, help others etc. I have started to feel tearful too, it is helpful to know that it  can happen to anyone any time. How is it going now? Are you managing to “accept each day as it comes”?  They sound like wise words

Hi Mondaymonster ,

My original post should have read last week not last year ! I am now 8 weeks post radio and yes I'm doing good except for really bad cramps which is terrifying I have started taking tonic water n magnesium tabs n my consultant suggested quinine tabs .

I would say my energy levels are better ,not the exhaustion  I had a few weeks back ,and mentally feeling ok taking each day as it comes . If I'm tired ,I'm tired !! Everything can wait ! 

Hope this helps . The journey slowly gets better .. wishing you the very best x

Lily x

I’m still in my journey but I experienced this kind of sadness and emotional turbulence after my sister was told her hodgekins disease was in remission some years ago and so did she. I think you live on adrenaline and hope for so long, you have all this support and appointments and relationships with other patients and the nursing staff and consultants and then it’s gone. Its busy and you’re all in it together and then it’s gone! It’s incredibly disorientating and after a couple of years of this is the way life is, it’s hard to adjust. Cancer affects you deeply for a very long time, and when your frightened and ill you don’t deal with all your emotions, they are suppressed a bit, then time opens up and into that void they come. This safe place is still here though, bring it to us x

Sorry to hear about those cramps, is it from a drug you have been prescribed? It sounds like a horrible experience. I’m pretty good physically, but rather unsteady emotionally. I like the sound of the journey gets better, thanks for writing that. Best wishes on your journey too

Thanks for your well expressed constructive comments Anna. I share your experience of living on Adrenalin and then being disorientated and finding it hard to (re)adjust. I’m so glad I have found this safe place to rest from the turbulence. good luck as your journey continues

And you, keep in touch xx