First Oncologist Apparently What Happens?

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Hi I’m Lisa , Hope everyone is doing ok . I have my first Oncology appointment on the 15th June can anyone tell me what to expect. I have invasive lobular breast cancer the tumour was 14mm and removed with clear margins and my lymph nodes were clear. Like everyone my diagnosis has hit me very hard.I was told it was stage 1 grade 2. I’m trying to be more positive about my situation but I’m terrified. I’ve got an adorable on Tuesday with a clinical psychology because I also suffer with depression. Will I have to have more scans, tests, etc..

Wishing everyone a lovely bank holiday, peace of mind, and a full recovery.

Lisa

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  • That should say appointment not apparently!! Predictive on my phone Weary

  • Have you been told whether you will get chemotherapy or radiotherapy? From your diagnosis and operation, I could have thought just radiotherapy as it sounds like they caught it very early.

    I think radiotherapy is standard after any breast surgery so the oncologist will take you through what happens and what side effects you could get. My first oncologist appointment was before chemo so I got taken through all of that, and I also got the results of my all-body CT scan at the same time. The oncologist was fantastic, giving me a huge amount of detail on what they were giving me, what to expect etc. It is a multi-disciplinary team that look after you, so your oncologist will already know your diagnosis and anything that has happened to you so far. 

    I always took a notepad with questions to all of my appointments, and I took loads of notes on what they were saying to me too. It's so easy to forgot when there is so much info.

    Good luck!

  • Can I make a couple of suggestions for your first (and subsequent) appointments, take a notepad with the questions that you have thought of. Take a friend (or failing that a spouse), you will be stuck like a rabbit in headlights and a lot of the information will be forgotten.  Not saying that the friend won't suffer the same rabbit in headlights problem, but between you, you should remember a good portion of the information.

    Oh and Google is not your friend, Macmillan, Cancer research UK, NHS are good impartial sources of information, a website for a hospital in a foreign country might not be as impartial.

  • Agreed about the notepad, for questions and to write down what they are saying.

    Just wanted to mention that we still can't take someone in to appointments as a general rule due to covid so check first or you might be thrown by being refused at the time. 

  • At the Christie in Manchester it is patients only unless you are having a consultation, at which point the door staff will let your companion through. The staff are aware that you may need support when processing information. It's nice to have someone to talk to (or grunt a response if you are married) while you are waiting to have a scan, but not really necessary in the middle of a pandemic.

  • I live Hull East Riding  my husband was allowed to come in with me for consultations   I’m sure hospitals will allow this xx