Not a great start!!

FormerMember
FormerMember
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Yesterday I went for my Assessment to start chemotherapy next week, this was the one my partner was allowed too. A bit of a nightmare start as they really struggled to get blood (nothing new for me). Then I was talked to about the treatment etc….

I just want to add my journey so far has been amazing (as it gets in this situation) I’ve been treated so kindly & with respect & complete professionalism from Dr’s & Nurse’s.

I was handed my schedule for my treatment & didn’t really look as I struggle to take everything in at the meetings, I passed it over to my partner, he noticed a different name at the top of the page, he questioned the nurse & she said not to worry about the name as it was one of the nurses.

When I got home I got a call to say I was given the wrong schedule, the schedule belonged to the male patient before me (told to me today by the receptionist) Though I appreciate mistakes happen, this has worried me in case I have received the wrong drug plan etc.. I called back this morning & it was played down, so I am now waiting for a call from the oncologist as I want to check I have received the right information, as on closer look of the paperwork the treatment plan didn’t match what the oncologist had told me on Friday!! I was told every 3 weeks, the one given to me yesterday said every 2 weeks.

This isn’t helping my stress levels at all but I’m sure it will get right!!!

Be sure to check paperwork xx

  • FormerMember
    FormerMember

    Hi Nas65 welcome to the forum and OMG what a nightmare for you that's shocking and even when you tried to point out the error you have been re-assured by a nurse that all was well when in fact it wasn't.

    I would make a call to the Oncologist and have a chat with them and explain to them about all the mix up as they may well not know any of this but you need them to re-assure you and to send you a copy of your plan after they have thoroughly checked it for you.

  • FormerMember
    FormerMember

    Hi Nas65, golly that sounds very stressful at a time when you are desperate for reassurance and certainty! But I’m sure as Granny59 says it will all get sorted. If you struggle to give blood it might be worth having a PICC line? I resisted and pushed on through 13 chemo’s with weekly cannulas but my veins gave up in the end and I wished I’d had a PICC sooner! They are so convenient, and apparently the Hickman lines are better still. Just takes some of the stress out of your chemo appointments! Wishing you loads of strength, and once you are in the process and starting to actually tackle your illness I think it becomes a more positive pro-active thing? I felt really detached at the stage you are at, it all seems so surreal! Best of luck, and there’s a load of us here to talk to x