Hello, This is my first time posting here. I was diagnosed with stage 2 invasive breast cancer in 2017, I had a lumpectomy and 3 lymph nodes removed, I was told there were no signs of cancer in the lymph nodes so only need radiation. I had a bad reaction to the radiotherapy, but with 6 weeks of steroids recovered from that. They then said they could see some lesions on my liver but after 3 months and another MRI it was decided this was not cancer. I was given Letrazole, which I was told I would need to take for 4 years, this gave me very painful joints so this was changed to Tamoxofen, the only side effect I got from Tamoxofen were hot flushes which were quite intense but manageable. 4 years later and after a CT scan for digestive problems, namely very acid stomach, I was diagnosed with a large tumour in my liver and further smaller tumours. I had a bit of a delay in seeing the consultant but was again put on Letrozole and Palbociclib I have now been taking them for just over 2 months, I am still getting very bad hot flushes but so far my joints are ok - I do try to exercise regularly and that does seem to help. Unfortunately with the Palbociclib by neutrophils (white blood cells) each month have gone down to .50 so the first month I had to wait two weeks before I could start the next month, the dose was lowered to 100 mg but the same thing has happened again this month .50 again. I am hoping I will be able to carry on with the 100 mg this month - has anyone else had this problem? I am quite worried - I have just had my first CT scan since starting the medication and feeling quite nervous to see if the medication is working. I would love to hear from anyone with the same sort of problems - thank you x
Hi Zeds and a very warm welcome to the online community
It sounds like you've had a lot to deal with so I can completely understand how nervous you must be feeling ahead of your scan results.
You might like to join the secondary breast cancer group where you'll connect with others who have had a spread from their original breast cancer. If you'd like to do this then just click on the link I've created and then join and post in the same way as you did here. To save you typing this all out again you could copy and paste it into a new post.
Wishing you all the best
x
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