At last! I think I’ve found somewhere to post - I hope so. Sometimes just writing stuff down helps. I’m 121/2 years on from BC and all the treatments. Getting on with life even though with some auto immune issues. Had a routine dexa scan but then got a call from the GP to tell me that although my bone density is “perfect” and there is “no osteoporosis” it showed a compression in a lumbar spine bone that was a fracture and I must have an X-ray. Well that was a surprise as I had no pain. X-ray done and I heard nothing. I phoned for results and got told the doc had ticked it! I asked for a phone appointment- nothing. Three weeks later I got a letter saying I have been referred to physio. Three guesses where my mind is!
I know it is difficult with Covid and all that but .............. I tried to get a phone appointment with the GP but was told “you’ve been referred why do you want to talk to the doctor?” When I was crying she finally offered me a date three weeks later (this has since been cancelled again) and booked me in for the Covid vaccine?!? (not ungrateful but not the same as talking to someone). I tried to get on this site an it had changed and I couldn’t navigate it, I tried another site, wrote a post and it disappeared- timed out- I took too long to write it apparently- crying too much.
Have since tried to contact GP via their online thing even that took three days when a same day response is promised and I had to chase it and was told I should have agreed to email response and why didn’t I try Livi.
I’m not expecting miracles but with an additional ever increasing wake me up at night pain in my R arm that has lasted for over three months just how do I breakthrough and find a way to speak to the doctor at the practice where I am registered.
So although I am not normally prone to anxiety not being able to get any kind of response is leaving me on the edge and cups of tea, chocolate and rubbish tv only distract for a short time.
Sorry for rant-splurging. Writing it down does help get the fear, frustration and so on out a bit. Thank you for reading.
AMSML, that is just awful. You need a proper explanation, and they have treated you very badl. It dies not sound to me that a physio referral is appropriate. If you have a. Old compression fracture it may be totally unrelated to the cancer and could be years ago as have one ine my dorsal spines from scheuerrmans disease when I was 13. I have a dorsal kyphosis and was a,ways being told to sit up straight. It just makes me round shouldered a d gives a bit of lain sometimes, You need to know whether yours is cancer related, and they should have addressed this directly.As I said it could have another cause and it should be found and told to you.Tbe arm pain needs investigating too. Can you change GPS?Good luck xx
Onwards and flatwards (don't do hills) and keep walking if you can!
Hi AMSML
Hi - welcome to this site. Sorry to read you are so anxious. This Covid situation is making lots of us very cut off from normal interactions with others and as a result anxiety can spiral.
It’s nice to read you are 12+ years after BC. I completed my treatment last October and it’s true what others say that every ache and pain that appears makes you think it may be cancer returning. It’s a hard one.
Your GP can’t understand what you are going through but hope you will be able to speak to a doc soon. I think it would be wise to go to a physio about your arm pain as lack of sleep can make you unsettled and weary. Maybe a physio will help explain the x ray result too.
Sorry I can’t help much but just wanted you to know I had read your post and am thinking of you.
Take care
Jojodot X
Sorry to hear you are having a troubling time. I suffer with Fibromyalgia (along with newly diagnosed breast cancer) so I have an understanding of your pain.
My doctors in the past have been pretty rubbish and any new pains they put down to my fibro and it got very frustrating. So I end up over exaggerating a bit so they actually listen. Not ideal I know but it did work. Got referred to a specialist in the end.
For you, if you are struggling with anxiety or any level of mental health reach out to someone. You can self-refer to talking therapies via the NHS which were massively helpful to me. I'm sure macmillan will help out as well.
Hope you get the treatment you need soon and feel better x x
Oh AMSML, I am so sorry you are feeling so anxious. I must say I can see why. Your GP should be supporting you. Do you know you can always ask for a 2nd opinion. Please keep pushing and make sure you tell them of your worries.
now that you have found this site, keep the messages coming. There is always somebody who will support and respond.
hope something changes soon and you get what you need. But if you are free long anxious again, shout out
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