Migraines on EC

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Good morning guys, 

it’s been a while since I’ve been on here but I was diagnosed with breast cancer in October 2020 I had a mastectomy in November. In December I was told it was in my lymph nodes so I needed 6 rounds of chemo 3x EC and 3x doxetocel I had my first EC on the 16th January ever since I keep getting a migraine right behind my eyes. Has anyone else had this? I hope everyone is doing ok x x x x

  • Hi  I had EC x 6 and from the first one in the last Ten mins of infusion I would get a blinding headache starting with eyes and blurry vision . For me I would take two painkillers as it started and close eyes while saline bag infused . 

    I already take  a preventative daily tablet for migraine so I didn't get migraines in rest of cycle ....I would say it possibly a SE for you .

    EC is extremely dehydrating are you drinking enough ? 

    I would ring your unit and have a chat they should be able to put your mind at rest and suggest something 

    good luck 

    One step at a time and ...Breathe !
    xoxox
    Margaret
  • Northerner - your mention of dehydration is the most sensible thing I've heard in a long time to link several experiences which I had.

    I had EC x 6, followed by Paclitaxel x 6 .in 2019 A few minutes into my 3rd infusion of Paclitaxel (the first 2 were fine) I experienced the beginnings of the migraine aura. I remember looking at the nurse's face and then telling her. "I think I'm getting a migraine" I then began to feel really, really bad, and saying so. Next thing I knew was that I woke up, surrounded by the whole crash team, but feeling fine and surprised to find "sick" on my tee-shirt. I was taken up to a ward, where I was monitored for some hours and then released. We did continue the course of Paclitaxel, under a slower infusion rate, but I found it increasingly difficult to eat, or even drink. It was as though my entire digestive system, from mouth right through, had lost the habit. So much so that I shed about a third of my body weight (not the best way to do it) and at one point collapsed in a supermarket car park and spent about 8 hours in A&E, diagnosed with - dehydration.

    This is the first time that I've linked the migraine aura and the reaction to the Paclitaxel with what was possibly the early stages of dehydration. But it does make a kind of sense.

    I would reinforce your suggestions to Ltommo88 to be sure to keep the fluid intake high and consult the team. 

    I should say that I'm fine now (and putting more weight back on in these lockdown days than is strictly necessary!)

    Best wishes, Ltommo88, and thanks for the insight, Northerner.

    Denise

  • Glad it helped   I finished chemo Dec 2019 but still have the effects of dehydration cracked skin at fingertips better than no fingerprints because of skin peel last year . I also can't grow nails as they do brittle . I don't go anywhere without bottle of water . Lol Joy 

    One step at a time and ...Breathe !
    xoxox
    Margaret