Good morning guys,
it’s been a while since I’ve been on here but I was diagnosed with breast cancer in October 2020 I had a mastectomy in November. In December I was told it was in my lymph nodes so I needed 6 rounds of chemo 3x EC and 3x doxetocel I had my first EC on the 16th January ever since I keep getting a migraine right behind my eyes. Has anyone else had this? I hope everyone is doing ok x x x x
Hi Ltommo88 I had EC x 6 and from the first one in the last Ten mins of infusion I would get a blinding headache starting with eyes and blurry vision . For me I would take two painkillers as it started and close eyes while saline bag infused .
I already take a preventative daily tablet for migraine so I didn't get migraines in rest of cycle ....I would say it possibly a SE for you .
EC is extremely dehydrating are you drinking enough ?
I would ring your unit and have a chat they should be able to put your mind at rest and suggest something
good luck
Northerner - your mention of dehydration is the most sensible thing I've heard in a long time to link several experiences which I had.
I had EC x 6, followed by Paclitaxel x 6 .in 2019 A few minutes into my 3rd infusion of Paclitaxel (the first 2 were fine) I experienced the beginnings of the migraine aura. I remember looking at the nurse's face and then telling her. "I think I'm getting a migraine" I then began to feel really, really bad, and saying so. Next thing I knew was that I woke up, surrounded by the whole crash team, but feeling fine and surprised to find "sick" on my tee-shirt. I was taken up to a ward, where I was monitored for some hours and then released. We did continue the course of Paclitaxel, under a slower infusion rate, but I found it increasingly difficult to eat, or even drink. It was as though my entire digestive system, from mouth right through, had lost the habit. So much so that I shed about a third of my body weight (not the best way to do it) and at one point collapsed in a supermarket car park and spent about 8 hours in A&E, diagnosed with - dehydration.
This is the first time that I've linked the migraine aura and the reaction to the Paclitaxel with what was possibly the early stages of dehydration. But it does make a kind of sense.
I would reinforce your suggestions to Ltommo88 to be sure to keep the fluid intake high and consult the team.
I should say that I'm fine now (and putting more weight back on in these lockdown days than is strictly necessary!)
Best wishes, Ltommo88, and thanks for the insight, Northerner.
Denise
Glad it helped denique I finished chemo Dec 2019 but still have the effects of dehydration cracked skin at fingertips better than no fingerprints because of skin peel last year . I also can't grow nails as they do brittle . I don't go anywhere without bottle of water . Lol
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