Secondary breast cancer

FormerMember
FormerMember
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Hi - I know that I am not alone in this but I am really struggling at the moment.  I was diagnosed with breast cancer last March, had a mastectomy, then lymph nodes removed and in May was diagnosed with secondary cancer (it had spread to my lungs and spine and possibly liver). I had never had a cancer diagnosis before so it was a bit of a shock to be diagnosed in the first place nevermind being told that it had spread.  I dealt with it as I normally do by just getting on but for some reason I am getting very emotional and scared now as I guess it is coming up to the year anniversary of the diagnosis and so it is bringing everything even more to my mind.  I am extremely lucky in the fact that I dont have symptoms.  In fact it is the tablets that I have been put on that make me feel exhausted and queasy. I guess I am writing this post as I am getting concerned about timeframes. I dont have any support and am extremely isolated. I think that with everything going on I am just tried of having to deal with this on my own. I am a great one for putting on a front that everything is completely fine and that I am dealing with it but I am not really. For all those that are feeling a little bit more exhausted with everything that is going on I just want to send out massive virtual hugs.   

  • Hi , sorry you are dealing with this on your own, I hope you will feel less alone just being here on the forum. There are many folk here also with secondaries, we’re a real mixed bunch in every way! Except that we’re welcoming and caring, so I hope that will help. 
    I thibk many of us put on a front and act as if it’s all hunky dory whilst at times quaking with fear inwardly. This is the one place you don’t have to pretend. Actually the cancer support officer at the Maggie’s centre where I went around this time last year said just that to me when I went for my initial visit and straight away burst into tears! A shame that they are now shut but I still do weekly zoom mindfulness sessions with the one at Addenbrookes. 
    I can’t help re timescales but I’ll just say that there seem to be many here who are living with secondary cancer for years. 
    I also totally get your point re the treatments making you queasy. I think that is one of the really challenging about breast cancer, most of us felt perfectly well before our treatment but then feel varying degrees of unwellness because of side effects, both short and long term. 
    Thanks for the hugs, sending you a very big virtual hug back. Love and best wishes, HFxx

    PS - have you looked at the Awake thread, started by lovely ? Worth a look for lively banter and also lots of kindness and support. Xxx

    HappyFeet1 xx
    Don’t be afraid to cry. It will free your mind of sorrowful thoughts. – Hopi
  • Hi , just wanted to pop on and say hello. I am a fellow Secondary Cancer badge wearer! I have been 'living' with secondaries for 5years after being diagnosed with primary Breast Cancer in 2013! My disease is currently stable and although I have ongoing issues caused by the original chemo I had and then the surgery to try and remove the secondary tumour. But the cancer itself has taken a back seat and is currently behaving itself quite nicely. 

    So although I only have bone mets, I know others that like you have lung and liver involvement and they still continue to do well. So don't be assuming you'll be going anywhere anytime soon! 

    I know it must be hard trying to deal with this on your own. Is there no one you could 'bubble' up with? So that you can have some company? Just a thought. If not, as Alison  mentioned. You would be made VERY welcome in the AWAKE thread. So long as you are in the need of a few giggles and can put up with slightly 'strange' individuals.....well we aren't called the Fruit Loops for nothing!! If you feel that might be of interest to you then just post on there and I promise you will be made very welcome! 

    I hope you can find someone to chat with openly soon. As this is not something that you can do on your own, unless you have too or if that's what suits you! Be kind to yourself and remember it's okay to admit that you are not okay!! Sal xxxx