Hello all,
I don't actually have a diagnosis of breast cancer so I hope that it is still OK to post here. I suppose I am just looking for a little bit of support/advice.
So, I am 35 and have a history of three benign breast lumps (fibroadenomas), all in my left breast. Previously, my right breast has always been completely fine. A couple of months ago, I started to notice that some of the tissue in my right breast felt odd, harder and not at all like before or like the same area on the other breast. I suppose it is what people call thickening of the tissue. I kept an eye on it and about a week and a half ago noticed that there was now also a more defined hard area/lump amongst the tissue. After waiting a couple of days to make sure it was still there, I saw the GP, who has referred me to the breast clinic to be seen within 2 weeks. I'm currently still waiting for the appointment.
I've also been getting pain in lymph nodes on the same side of my body; underneath my arm, near collarbone and in my neck. I've also been incredibly tired lately and have had bouts of nausea and lost appetite. I do have a diagnosis of fibromyalgia and can suffer with that so sometimes it is hard to distinguish what is new symptoms and what is a 'flare', but my usual fatigue is more physical whereas this is actually needing to go to bed and falling asleep in the day. To the point where when I have been working from home I have been using my lunch break to sleep.
I'm just feeling very worried because things feel different this time. The area of concern is larger and more irregular in shape, it's a different breast, I am older and the tone of the GP consultation seemed less reassuring (although it was a different clinician so this could be down to personality). I want to tell myself that everything will just come back as being fine like the previous times but things just seem different.
I guess I also have a couple of questions people may hopefully be able to help with:
1) Does having had multiple fibroadenomas put me at any greater risk of developing breast cancer?
2) Has anyone had the experience of benign breast lumps in one breast, but then a lump in another breast was cancerous i.e. does the fact this previously fine breast now shows changes make it any more likely that there is something more serious going on.
Any replies are much appreciated. I'm really hoping they call with my appointment today so that I will at least have a date.
Hi , not sure I can answer your questions very well but wanted to say hi and welcome! Hopefully yours will be a temporary membership but this 'club' provides lots of support and shared experiences so you won't be alone during this horrible limbo time. Many here have said that the waiting is the worst. Re your questions: in my case, I had a fibroadenoma in my left breast about 15 years ago, and then a cancerous lump in that breast 2 years ago. The right breast has had 'duct ectasia' (inflammation of the ducts, resulting in a tearing pain) when breastfeeding 25 years ago and cysts many years later. So both sides have had benign lumps but of different sorts. Nobody medical (or otherwise) has suggested that any of my 'previous' was related to my recent cancer diagnosis and I wasn't given any extra monitoring so I assume no link? But if I'm honest I just don't know. However lots of my friends have also had an assortment of benign breast issues and none have then developed cancer.
I hope you've had that call by now and have a date for the clinic. Try to stay away from Dr Google in the meantime as the info there is often out of date or even wrong. Remember that the majority of breast lumps are benign, but also that, if this lump turns out to be cancerous, breast cancer is very treatable nowadays. There are lots of us rattling around this site, some are many years post treatment and very much still here! Others drift away and simply get on with their post cancer lives. Soon you'll have some answers and will know what you're dealing with. Sending love and a big virtual hug, HFxx
Thanks for the response, HappyFeet1.
No call yet. I was told by the doctor to chase up tomorrow if I hadn't been given an appointment by then so will be ringing in the morning and hopefully get a date set. The waiting feels a bit unbearable, though I know I'm in a queue and there are likely women being seen today who have already had to endure a wait of their own.
I was guilty of consulting Dr Google at first, but in all honesty I think I was looking for some conclusive way to tell whether the lump is serious or not just by the feel of it, which doesn't exist. So I think I'm just going to wait to see the doctors now.
I keep waking up every morning and the first thing I do is check it's still there. I guess I was hoping that it was hormonal and would just disappear overnight but I think it's too big of an area for that to feasibly happen.
Hi ,
I too am sorry to find you here - the waiting for a proper diagnosis is the worst thing .It may be that it is not cancer which will be good but if it is then be reassured that it is very treatable these days .I can't comment on benign breast lumps as I have never had them, but you have made the first steps to sorting out your problem by being referred by your GP.I can only echo HappyFeet1 in her advice about Dr Google .
Sending you big hugs and hope you get your appointment very soon .XXKwissy
KwissyThanks for the response to my post, and for the reassurance.
Chased up the referral with the doctors today as they told me to and was told I'm definitely on the list to be seen within 2 weeks and should hear from the breast clinic in the next couple of days but to call back on Friday if I haven't heard anything by then.
I'm really struggling a lot with sleep, have been awake until at least 3am the past few nights due to worrying.
Not sure if I've just become more aware so only just noticing it, or if it is new, but it does seem as though my right breast has slightly changed shape and size. There is a noticeably bigger outward curve to the upper outer part, especially when I raise my arms. I also noticed running my hand over the top part of the breast compared with the left side it feels as though there is much more tissue or as though it is swollen. This is something I haven't had when I've been referred previously and it's freaking me out a little bit.
Fingers crossed I will have a date for the appointment soon.
HI ,
Glad you chased up your appointment but sorry to hear that you are still waiting to hear when it is .As I've said
before the waiting to hear what is happening really is the pits! Because you are looking at your breast so often you will see changes that may or may not be significant. I found this after my radiotherapy- even a change in light seemed to make it look different ! I suspect that your sleep will not be as settled as usual until you have a diagnosis . Have you tried a few drops of Lavender oil on your pillow at night-I found that helped me settle to sleep.If you are awake during the night try looking at the AWAKE thread on here- usually others around there 24/7 Sending you very big and gentle hugs - you are in my thoughts xx Kwissy
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