I didn’t have inflammatory breast cancer, but I wanted to say hello. Between us, we’ve experienced the different treatments and so there’s always people here to share experiences and lend a sympathetic ear.
There is also a group for inflammatory breast cancer, where I’m sure you’ll get plenty of specific advice.
My experience of chemo probably isn’t the best to go by as it tended to make me very ill with hospital admissions after each dose. The oncology team did say this was unusual as altering the dose level made no difference to the symptoms I got. Because of this I actually lost weight. I only managed to eat on either the days when I was as on steroids Or the final 3 days before my next dose.
That sounds awful. I eat a lot when I am on the steroids and my weight is slowly creeping up. I keep being told not to worry about it. I suffer with awful fatigue so am doing hardly any exercise. Is a vicious circle. Thank you
I would agree with the don’t worry about it bit. Concentrate on getting to the end of the chemo. The weight can be sorted afterwards. Exercise when you have the energy. It gets better! A year on from Chemo, surgery and radiotherapy and physically I’m back to being fitting fit. I still have to work on the mental side of things as the feels of guilt at what I put my family through creeps in occasionally.
Oh I hear you. I feel guilty most days. I’m not sure as you say that will ever go away. But my daughter reminds me that she rather I was here and we had all this stuff to deal with on a daily basis than never see me again. I hang on to those words. She is 18 and my son is 23 they have been shielding with me. But that will all change soon as she will be going back to 6th form and he will be back in the office Part time. Just another thing to worry about!
My son was 16 and in the final push towards his GCSE’s . We were lucky in that he had a teacher who had been through the treatment a year before and she had returned to school not long before my diagnosis. He had always ‘got on’ with her so went to speak with her and she guided him through my treatments without me having to explain to him, I will always be grateful to her for that. My hubby says the same as your daughter, that he would rather deal with what happened then than me not be there. I think it makes some families stronger. How far into treatment are you?
s a vicious circle. Thank you 
