Hi all
im 39 and in 2018 I was dx tnbc had a lumpectomy (15cm tumour removed) all lymph nodes then chemo and radiotherapy. Lucky me developed lymphodema to my arm and affected breast. Roll on Christmas 2019 and it’s back so have a full mastectomy. Since having the mastectomy the scar felt like it was going to split open but because of Covid and my margins being clear they didn’t want to see me. 6 months later I find lumps on the opposite breast so arrange an appointment to see them. By the time I see them my scar has got infected and I am unwell with it and the wound smells rotten. When I see them they initially aren’t bothered by the wound and happily did a swab. It was only when the radiologist saw it and spoke to the surgeon who poked his head round and wanted a lump I didn’t even know was there biopsied. Had an urgent pet scan which showed spread to the bones and lymphatic system plus this cancerous wound. Surgeons can’t do anything so over to oncology I go. My appointment is on Tuesday. I’m just so worried has anyone else experienced this. I thought cancerous wound is found in advanced stages of cancer???
Thanks and sorry for the long post
Hi
I'm sorry to read all you've been through since originally being diagnosed with breast cancer in 2018. It sounds like you've had to cope with a great deal.
It's natural to be worried when you don't know what's happening but I'm hoping your oncology appointment went well yesterday and you've got a way forward now.
I can't help with any of your questions, not having had the same type of cancer as you, but replying to you will 'bump' your post back to the top of the page where it'll be more easily seen by others in this group.
x
"Never regret a day in your life, good days give you happiness, bad days give you experience"
Oh I'm really sorry to hear this . I can't begin to imagine how you and your partner are feeling right now.
When you feel ready, can I recommend that you join the living with incurable cancer group. Please don't be put off by the title as they talk about all sorts of things including ordinary stuff like gardening or baking as well as more practical things.
Clicking on the link I've created will take you there where you could have a little look around before joining if you want to. It's a very safe place to discuss anything you want as only other people with an incurable diagnosis can post there.
Macmillan also has lots of information on how to talk to children when an adult has cancer which you might like to take a look at.
Sending a very big, virtual ((((hug))))
"Never regret a day in your life, good days give you happiness, bad days give you experience"
