Hello

Hi   

Sorry to see you joining us here, shame you didn't stumble across the place prior to chemo ?

"Stranger from another planet, welcome to our home - Just strap on a guitar and we'll play some rock n' roll" ♪♫•*¨*•.¸¸♫♪♪♫

I'm a fella,  it was my wife who was the patient, however there are two other fellas kicking around so I'll tag them both 1212 and Andy_49 hopefully they will get back to you 

Andy_49 has just finished rads and 1212 has just started taking Tamoxifen.

Hope this helps a bit, male BC is fairly uncommon and it helps to know you aren't alone with this.

Take care, G n' J

Hi Guitarman01

Welcome to the site although I'm sorry for your bc diagnoses. 

There are a few people having different side effects with tamoxifen so it will be of interest how you get on with it.

Mine is leg cramps amongst a few others. Woke up the other night with a mighty aaaaarrrrrhhhh !! whilst holding my calf. The wife nearly s--t the bed. The last time that happened I was shouting fire fire in my sleep!

How have you found returning to work? How are people with you as it's not a common cancer in men?

1212

Keep battling out there!

Hi 

Similar story in that I finished chemo EC x6 in Dec cumulative effects so fine for 4 then lousy SE for 5& 6 . Just started to feel got it out of system and along came covid and shielding . 

On treatment for a while yet every three weeks story on profile . 

Take care 

margaret 

Hi ,

Welcome to the Forum that none of us wanted to join, however, once here you will find real people that understand what you are going thought, even have answers to your questions plus we are know to have a laugh at times.

Reading your reply 's you kind of set me off, it is brilliant to see the guys getting together and chatting, hmm maybe not the right choice of word can't think of the right word here - it's just nice to see you fella's getting together and having a chat - us lady's do waffle on (no need to respond - maybe lockdown is getting to me more than I realised hahaha).  Dreamthief does a great job in trying to keep us in order - and... is a mind of amazing information, honestly as others are on here, if you have any questions or concerns just ask away, as we all say 'no question is silly' - if you can't think of questions then just be here joining in as and when you feel like it.  Saying this, if you find sleeping a problem, there is a thread called 'AWAKE' it's a type of 'drop-in' thread - we all seem to pop in and out of there during both night and day time hours - anything and everything is discussed.

Couple of things from me, remember 'you have gone thought so much, your body has gone through so much' - it is still very early days, so fatigued is to be expected (I was lumpectomy and combined radiotherapy).  You have a lot of healing to do, both inside and of course mentally too - so fatigue and down days are going to be the normal for a while - you have a lot to take in and we only seem to get to this part when we are the other side of treatment - it then hits us 'what has happen' - each day will get easier, the up one minute and down the next will slowly change, if you get the instant anger that seems to come from nowhere - even this gets easier with time.

You must be so mad after going though 7 months of treatment then lockdown - the having 'parole refused' is a great analogy - you have more than likely been planning that when treatment is finished you'll do this or that, holidays, etc - I think we can all relate to this, we seem to look at that we have gone though as an 'eye opener' - in a way more blessed - because our eye's have been opened and we can now make the extra push to enjoy life... like you say 'then lockdown' - the other way to think;  you are so fortunate to of got through the operation and the chemo 'before all this kicked off'.  

Right, I'm waffling - Welcome to the Forum, please don't be a stranger, plus 'the lads need the extra support'.

Hi and thank you for the welcome, I realise it is uncommon for men when my consultant said I was her first

Funnily enough I feel more anxious about things the longer it is since my treatment finished, I guess it is just about getting used to not having weekly appointments, not that I miss them

all the best and thanks once again

I was very open with people about my diagnosis and kept a blog, to act as a diary but also inform people that , hey Men can get it too. Happy to share my blog if anyone is interested.

Take care

Hello,

I think many of us would be interested in reading your blog and I dare say many of the men in here would also find it very useful.  

Like you say it is very rare and possible a hard thing to talk about or for people to understand.  Having someone that has gone through this and is willing to share experiences etc can only be a good thing.  I can say from my side, I came on here in total despair and by talking/typing to other people that had gone thought this - first it gave me hope in a world that I thought had already tumbled down and then it gave me the courage to go forward for my treatment (even stepping out the box for the actual treatment I had - and I will share and share this with anyone - if it helps just one person get this treatment it is worth it - I had 'combined' lumpectomy and internal radiotherapy treatment given at the same time as my operation).

So, going back to your blog..... if you decide to post it, there are a couple of ways you could do this (others may have better ideas) - my initial thoughts are:-

Did you do the blog on this site, is there a link to it? or and I think this would be good (even do both).... Open a Thread/Post (names gone) with something in the title referring to Man and treatment - then you can have the tread and also keep adding to it and of course others will come along and add their thoughts or questions along the way. This would then be available for anyone that comes on - especially if they are searching for 'man with/male with/men with etc .....' (just my thoughts again).

Right 'Waffler' is going - I do think I should change my name to Waffler hahaha