*** June BC Chemo Club 2020 ***

Great to hear how you're getting on. I guess I'm a few weeks behind you.

After reading other posts on here I'm planning to ask for the cold cap. I got a bit twisted about hair loss then gave myself a pep talk. If you have to have your leg chopped off to save your life that's it for good- it wont grow back- but hair can!

With the hot flushes I'm getting from the letrozole, the idea of an ice bucket sounds good LOL

Hi

definately worth giving the cold cap a go especially to help with the hot flushes !! . Early days for me but I am hopeful it will help limiting hair loss. 

Good luck

Linda x

Hello everyone, I've finished my chemo now and am recovering, but thought I'd let you new ones know that you get used to loosing your hair quite quickly.  My hair was waist length beforehand and it took me ages to get it to grow that long, but it started coming out after my second FEC and I had it cut down as short as the hairdresser could go, so it wasn't so bad when the rest fell out, didn't notice it really by then.  Later, I just went with it and didn't worry about being seen bald after answering the door to the postman and forgetting to pop a beanie on first, since it irritated my scalp a bit!  After that, I couldn't be worried about what others thought.  Take me as I am!  I had too much to worry about that was far more important than what people thought of my appearance.  I was really sick from FEC, then Docataxel was worse, believe it or not.  I got peripheral neuropathy badly in fingers and toes, so my last treatment was cancelled, loss of taste so food was nasty, nose constantly running, even now months afterwards, but if we survive cancer, this is the price we have to pay, so take heart all of you and good luck for the minimum of side effects.  Get Evonail for toes and fingernails, it will,preserve them, otherwise they split, splinter and you can even lose them later on, so take all the advice on here that you can.  Stay safe and good luck to everyone, I hope you all have a good weekend.

Giuliella

congratulations on completing your chemotherapy. I agree to what you said about loss of hair. We all worry about this most but after a while it doesn't seem as so important and we accept it.

Take care 

Linda x

Hi, I've been looking for evonail for weeks now does anyone know where to get it from? 

Audrey xxx

Hi Audrey, how you doing?  I cant help you about evonail but I'm using Sally Hansen vitamin E nail and cuticle oil I had off Amazon it seems to be working. 

Hi Deb I'm doing ok just mild SE but I'm doing as much preventive measures as I can. I'm using nail cream and painting nails black b4 chemo taking anti sickness for 4 days after drinking as much water as I can ( about 2-3 litres) hand it seems to be working for me. 

How are you doing this cycle? 

Audrey xx

Congratulations on completing your chemotherapy.

hope everyone is well.

I get my second chemo next Friday and totally dreading it as my first one was frighting,so far I’ve still got my short hair but no doubt by the weekend will see it start to fall out. 
I just hope with this session they give me the strongest anti sickness stuff.

stay safe 

hugs

Sandra 

x

Hi , what anti emetics did you get last time? I was high risk for nausea etc as had hyperemesis in pregnancy, travel sick, etc. I had aprepitant,  ondansatron and maxalon first cycle but still spent 1st night throwing up. 2and cycle they gave me lorazepam to take night before and after which seemed to help even though it's a sedative.  Still nausea but controlled as long as I took everything religiously. Lots of people seem to find the first cycle the worst, maybe other times your body recognised it so it's not such a shock? Good luck xxx

Hi Audrey68 - I think. Evonail is no longer available and company may have closed down . I went for Polybalm that has had a UK trial.Expensive - £39.50 for hands and feet 2 pack and took a while to arrive but working for me . Polybalm.com

All the best 

Jackie