Grade 2 Invasive Ductal Breast cancer

Hi Raider09

I'm sorry that you find yourself here...but a warm welcome to you.

I was Stage 2 Grade 2 Invasive Ductal with 2 positive nodes.

My lump was 21mm.....i had a lumpectomy followed by 6 rounds of chemotherapy and then radiotherapy. My chemo was 3x FEC and 3xT.

This was back in 2018.....so although our treatment is opposite way round....same treatment as me but i had two positive nodes.

If you click on my name you can read all about me.

It's easier said than done....but please try not to worry.

There are lots of discussions on here including chemo club and radiotherapy club.

Hugs

Lucy B x

Welcome, and I am really sorry that you have had this diagnosis. Your situation is very similar to mine and I am more than happy to be here online for you if you need any virtual support. If you click on my name you can read my profile. I also was diagnosed with Grade 2 IDC with a similar sized lump to yours.  I've had a mastectomy (my choice but I am very small and only a B cup so once the lump was removed there wouldn't have been much breast left and I didn't want recon - so mastectomy made sense for me), axillary node clearance, chemo and radio. Just finished active treatment and started on Letrozole. If you need any information or support then you will find it on this forum. There is plenty of knowledge as all of us have had slightly different experiences. Wishing you lots of luck for your CT and MRI scans. Hang in there and stay strong if you can. Try to get outside for some fresh air and sun today if possible, and take some deep breaths. x 

Hi , 

      I was diagnosed with invasive ductal carcinoma grade 2 in October 2019. Was ER+ and HER2 positive got 4 rounds of chemo first docetaxel herceptin and pertuzumab then had lumpectomy and sentinel node biopsy feb 2020. 3 nodes removed and only one positive however no clear margins so wide local excision and axillary node clearance. Unfortunately still no clear margins so had a masectomy in April. Results all cancer removed original plan was chemo surgery chemo radiotherapy. Now awaiting oncologist appointment to find out next treatment.

So only ever had one lymph node positive. My tumour was 28mm and after x4 chemo had reduced to 20mm. Just unfortunate my margins weren’t clear as I would have just had the first operation. 

Don’t want to make you more worried but I only ever had one node positive. I look through this site for people with the exact same as me but can be close to but not the same. Didn’t realise how individualised breast care treatment was. It’s amazing how they can tailor your treatment plan.

For me the beginning was the scariest bit lots of waiting and having scans. For me knowing as much about it alleviates my  fear. I would look through all the booklets and sites reading up on it.  

Good luck remember you have the breast care nurse on the other end of the phone to ask questions and provide you with reassurance. Hopefully not to long a wait for your scans.

Gail xxx

I have broadly same diagnosis/had same treatment  as Picture This 2 above so not dissimilar to you. Just to try & put your mind at rest re the node issue I found out, via sentinel node biopsy during mx that 3 of the 3 nodes sampled were not only cancerous but had also ruptured.  CT scan following auxiliary node clearance ( where another 4, I think, nodes were cancerous of 9 removed...memory fails me re numbers!) showed that cancer had not spread.

So please don't assume just because its spread to the nodes that its elsewhere as that may not be the case.  And if your team are confident its not spread (as were mine) that's good too.

Good luck on your scans & treatment.

Sam

Thanks for all the replies. I can't believe how many women this effects.

I'm trying to be positive, but I'm finding it difficult. I, have  very large breasts, and I check them regularly, so cant believe I have never noticed the lump and for it to have gotten so big. To me it appeared almost over night. 

I'm glad you all seem to be doing OK just now xx long may it continue xx

Hi ,

So very sorry you've needed to find us!

I too had IDC grade 2 but no node involvement, due to previous surgeries (in the past they removed cysts) I had a mastectomy and immediate reconstruction with implant (plus a previous sentinel node biopsy to confirm it was ok for permanent implant) and apart from Letrozole, no further treatment. So I escaped both chemo and r/t. But I am now 74, 73 when diagnosed in 2018. So now 2 years clear. 

You can do this! 

Hugs xxx

Hi

Sorry you have found yourself with this diagnosis - as you are now aware it is not a very exclusive club ! You have been given lots of good advice , but I was just going to add a couple of things. Firstly , no matter what reassurance you wish to take from someone having the same diagnosis as you - everyone’s diagnosis and treatment are so unique to the person , that it is impossible to compare to each other - I know when everyone is just diagnosed, all we want is to find someone the same and who has survived - but it’s not really possible. What is possible is to see so many women on this site , and the many, many more who aren’t on here, and how there are way more successful positive outcomes than negative ones,so take heart from that x 

The other thing I would say is prepare for the unexpected - treatment plans can and do change , not for any bad reason , but scans, biopsies, your own general health etc can all play a part in this - mine changed several times. We all want to become experts  in a couple of weeks of reading medical reports etc , but the professionals have trained for years and continue to learn as they work , so we may think we know more but we really, really don’t! So trust your team, but do ask questions and if something doesn’t seem right , mention it, I have always found everyone to be extremely helpful and kind. 

best wishes

jo x

So sorry to welcome you here...but it is a warm welcome! My info is in my profile but needless to say it’s been a challenging couple of years. Yes it so tough, yes it knocks your confidence but I will say it is doable, don’t rush yourself, take one step at a time and ...yes....you do come out of the other end. 

I am approaching 2 years from diagnosis...it has been a rollercoaster of a ride but I am starting to feel more like the new me....I will never be who I was but I do believe that for all of the crap I’ve been through ....I see life, family and friends through a different lens now and that isn’t a bad thing.

Good luck, keep visiting the site and ask away....we are right behind you! 

Hello,

I'm so sorry that you find yourself a member of this rotten club.  Your diagnosis is very similar to mine.  I had grade 2 IDC 14mm (ER+PR+) with one positive node (micro).  I had 16 rounds of chemo, 6 weeks of radiation, and I've just started endocrine therapy medication.

I remember that horrible fear, too. And to be honest it still scares me.  It's perfectly normal to feel this way.  But try not to worry about it spreading.  It sounds like your oncologist is pretty confident that it hasn't, which is a good thing.  The CT and MRI should also give you some added reassurance. And the chemotherapy and radiation treatments will take care of anything microscopic that may or very well may not be lurking.  My oncologist said that my one positive node was a micro metastases, so I'm hoping that it was just contained within that one naughty node.  I had a PET scan in January (after chemo) and got the all clear.  I'm sure your results will be the same.

Wishing you all the very best.  You will get through this and you will be okay.

Sending healing hugs.  Take care,

B

Thank you for this comment, Sam :-)  It gave me some much-needed reassurance, too (and I've finished treatment).  Are you on hormone therapy now?

Wishing you the very best, and thanks again for your most reassuring comment

Big healing hugs,

B