First bite syndrome

Morning 

Well we have been around the breast groups for about 8 years and yours is the first message I can recall mentioning First Bite Syndrome. Know this can be an uncommon side effect of some Vinca Alkaloid based chemo drugs so perhaps this is tied in with nerve damage from the FEC-T (my money is on the T part) and could be tied in with CIPN  'Chemotherapy Induced Peripheral Neuropathy'

Is this the nerve / cramp type pain around your salivary glands area and one side or both ?  There is a bit of info about this here on the US Oncolink website. Who seem to agree this comes from the salivary glands nerves.

Have you mentioned this to your Onco team to see if there a chance this could also be tied in with chemo and your MS ? From what I can read the most common group of people affected by this are those who have had neck surgery or radiotherapy but I'm not medically trained and am only going by checking out other reliable websites.

According to that Oncolink page reducing acidic food and drink which causes the salivary glands to produce more may ease this and it seems to gradually disappear on it's own - So maybe you will have to manage / ease the pain until you finish you chemo ?

Hope this is of some help, hugs, G n' J

Thank you fior the reply. It’s both sides and it’s like a sharp pain. I will try and keep a track on what food makes it worse and have a look at that link. X

• Hi I have just had my first round of chemo for breast cancer and I'm experiencing "First Bite Syndrome" I will be mentoring it and letting my oncologist know