Had Mastectomy last year. Just returned from a Consultation after feeling what I thought was a new lump, my Surgeon knows I worry an awful lot as previous 4.5CM tumour went undetected on routine mammogram, I'd already asked when I booked my appointment for a scan, he agreed to this. The Radiographer however, seemed quite annoyed and said "we scanned this area last time, I think you should be enjoying your life and not worrying all the time like this". I was annoyed but tried not to show it but then when I was driving home I thought do you know what, they have no idea how it is to have had the damned Cancer in the first place let alone telling me not to worry like this, it just adds to the whole sorry mess of the damn disease. Plus, she was one of the Radiographers who did nothing about the calcifications at each mammogram, despite me also having extremely dense breast tissue. I now realise through experience they couldn't have known for sure the calcifications were benign, dense tissue is like looking through fog. Totally arrogant! Plus I'm at an all time low looking after Husband with Parkinson's, Disease, Bladder Cancer and he's now recovering from a fractured hip, cause I'm worried cause how would we cope with me out of action again.
Sorry, its a bit of a rant!
peterawake that is totally unacceptable. No wonder you are upset. Unprofessional and uncaring. I hope she fud the damn test!! I imagine that you feel if you made a complaint you would be worried about comrback. Your surgeon believed you. It might be worth mentioning to him/her. Big hugs xxx
Onwards and flatwards (don't do hills) and keep walking if you can!
Oww peterawake, rant away, this is so not fair and like you say 'they have no idea' - if they did you would of had your scan. You would of been in shock/knocked back/unprepared on what to say as you was going in thinking you would be having a scan.
The Radiographer can be annoyed as much as they like, just get on and do the scan and if fantastic news is everything is clear, we will even praise the radiographer for knowing so much 'before the scan' - we can say 'oww I'm sorry, thank you for putting my mind at easy'... not leave you and move on to the next patent - whilst you go home and worry for then next however many weeks or months worrying, crying, shouting, feeling angry and mad!!!
This is not acceptable, especially when you believed you were booked in for a scan and more so given you past history - you want peace of mind. As for 'you want to be out enjoying your life and not worrying all the time like this'.... only confirms 'she know you are worried' and yes you, like all of us would like to be out enjoying life.... unfortunately, something keeps hanging over your head hmmm now what could this be. I know, let you have your scan and hopefully this will help you to do as she suggests. (Oww I am so mad for you)!
I believe most of us would of feel the same, we'd come out and then on way home have a melt down and then come on here - draw strength in knowing and understanding that you are not alone. You were led to believe you were having your scan, you need re-assurance, you want this checked, you was book in for a scan - so you should have your scan!
Can you either phone tomorrow, or get someone to phone on your behalf (even you phoning pretending to be someone else phoning on your behalf is good.... but, I don't think they will speak to anyone other than you - so, if this is still making sense 'you phone tomorrow' and say something along the lines of....
Hello, its 'X Here', I am unsure what happened yesterday, they were not able carry out the scan my Surgeon had arranged and booked for me to have yesterday, can you give me the new date. The Radiographer was telling me I should stop worrying and to enjoy life, well, when I get this scan out of the way hopefully I can move forward a little. What date is my scan please? (if they say on the notes its not time, say due to current situation the Surgeon agreed and requested this scan!!)
I really feel for you, you have such a lot of your plate and if people will just do what they are supposed to life would feel so much better.... written by the same person that broke down crying to DPD Customer Services.... because the Driver that came to collect a parcel, never came and knocked the door - seen gate was shut so drove off - whilst I'm waiting in for them arrrghhh..... it's the slightest things that can set us off, so your situation is definitely worth a rant - on a scale of 1 to 10, your rant was pretty rubbish though, I'd say only about a 4 ;)
Phone them!
Sending love and hugs xxxx
Hi peterawake I can't remember if you've said, but do you have some help to look after your husband? Caring for someone close with dementia is like living a nightmare. I cared for my mother for 11 years after I arranged a more top London to avoid a care home in Scotland. I did her shopping checked on appointments, pain bills checked that the (generally hopeless) carers who came twice daily for 10 minutes (meant to be 30mins) gave her a snack, drink and watched her take her medicine. Neither the nurses or carers could sit for the few minutes it took to make sure that it didn't end up behind the chair. Caring for someone with dementia is emotionally and physically draining, and really lonely.You must have time for you to go out and do something nice, even if only once every couple of weeks. If you can't/don't want to speak to family or friends then please contact the council and explain your situation if you've not done so already.
I agree with Whathappened that you should call tomorrow and politely ask for the scan, explaining what happened today. I fell and ruptured my left tendon about 6 years ago. I went to the hospital and was told that I didn't need a scan as it was just a bruise. I couldn't zip my boot closed for 7 weeks as my leg was so swollen (and very painful) and went back to the hospital with a letter from the doctor asking for an ultrasound in ambulatory care. I wasted almost 3 hours waiting, only to be told I didn't need one and it would 'be better soon'. Two years later I finally had the ultrasound and was told that it had been ruptured, if I'd come sooner it would have healed better and faster and I wouldn't 'have had this bother' (lame and in pain for 2 years!). It's almost better now as my doctor arranged physio. What I'm trying to say is that they sent me away twice when I should have been seen. Hopefully your breast is fine, but you should know to put your mind at rest, and an ultrasound only takes a few minutes to do!
Margaret xx
You’re dealing with so much peterawake on top of the anxiety we know that comes with having a cancer diagnosis and awareness we need afterwards. Your surgeon was right ordering a scan ... did you have it in spite of the radiographers attitude and remark ? I hope you you have help caring for your husband.... and get some respite.
sending hugs xx
“ The only constant thing in life is change “
peterawake it is a long time since we spoke. I have a horrid feeling I know who this radiographer is. Bless your heart, not what you want or need - outrageous xxx
Hi Flossie25,
Thank you for your reply. I did have it but I'm afraid she was so irritated by me that she did a small area and said it was fine, but I'm sure its a lump because I can move it around, it's about pea size, if it was nobbly bone I'm not sure it would move around when I pinch it. Surgeon tried to reassure me but I'm afraid I'm fretting because I was reassured with what was a 4.5CM lump! I'm going to my GP next week if I'm still not convinced.
I'm afraid I don't have any help with him because I feel Carers would just add to an already difficult situation, having worked as a Social Worker, now retired, I dealt with so many complaints from both relatives and the cared for people about Carers that I can't go down that road. He's not got Dementia although his memory is not as it was, it's more his physical issues that are a struggle. I've sent him to Respite following his Surgery because I desperately need to try and get my energy levels up and I'm struggling emotionally since my diagnosis/treatment, it's changed me so much and I struggle to be positive about the future. I feel awful sending him although he hasn't objected at all and they've been marvellous so I'm afraid he will go again at some point.
Best Wishes.
Hi Londonmumof2,
Thank you for your reply. I don't have help with him, my choice as I couldn't cope with Carers as well, I know there are some excellent carers but some aren't good at all. When I was working I used to deal with so many complaints about carers. His main problems are physical rather than mental, although he has some cognitive changes which have affected his personality, he used to be such a kind and thoughtful man and now it's all about his own needs, its part of the Parkinson's I'm afraid.
I find some medical people so opinionated and they really lack understanding, it's almost a battle with them, one of my GP's once said to me "you know your own breasts and what feels right" and its certainly true. I put my faith in them last time and they were wrong.
I hope you are doing alright? Sending Best Wishes.
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