Hi all ! after feeling quite positive I’ve had a bit of a dive these past few days. I had a mastectomy in August (clear margins and sentinel node was clear) and after initially being told no chemo, my onco dx test came back high risk so was prescribed a short course of 4 cycles of EC of which I had my last session on 18th Dec.
Post surgery and at my first appointment with oncology I was told I’d luckily not need radiotherapy. At my last appointment with oncology the plan was for Tamoxifen and the usual breast care services follow up yearly... yay!! Life could move forward!!
But the consultation was with a registrar and she called a few days later to say my consultant wanted me to have zoladex injections and she had spoken to radiology who said they would review my results and I would receive an appointment to discuss this also!
So I’ve gone from thinking I’m nearly there to facing more treatment! I know this is a rollercoaster ride but since all this I’m feeling little sharp pains everywhere and convinced myself they know something I don’t and it’s obviously already spread everywhere!!
has anyone else had this experience? My clinical oncology appointment is 31st of Jan 6 weeks after my last chemo. What are the usual time frames for radiotherapy? I had my first zoladex Yesterday , not sure what to expect and when I may feel it’s affects?
xx
Ooh Londonmumof2 forgot to say , glad you are seeing the first shoots of spring, my eyebrows and lashes are hanging on in there but very thin and I look like Ken Dodd in the morning with my random head hair,( I wore the cold cap but on top of the shedding , the hair that hung around seemed to snap off at my crown leaving me with about 2 inches of hair on top but shoulder length around the sides 
) Youve given me hope that things might just start looking normal again at some point in the next few months !
cxxx
Lol Claire1974 this is what my hair looks like! A month after my last chemo It's 10% shoulder length at the back and sides, and eyebrow length fringe, but it's mostly random shades of black and white between 1-2" long, sometimes on the same strand of hair, with my native pre-chemo brown on the ends of my original remainng hairs. I will cut off the longer bits eventually, and keep them in respect for their staying power!
Londonmumof2 your is definitely better than mine!! I’m very grateful to have it mind you even if it is grey and wirey! The ends are my usual blond , Thinking of making an appointment at the hairdresser this week to see what an earth they can do with it!
Have a great Saturday xx
Hey Londonmumof2. How are you getting on? I had my appointment with the clinical oncologist re radiotherapy and she apologised for the fact that I was there as it had already been discussed in the MDT pre chemo and that I wouldn’t need it . So apart from the zoladex and tamoxifen I’m done!
hopefully it stays that way but as we all know it’s hard not to become obsessed with it coming back, which is where I’m at at the moment. Hope the biophosphonate infusion and it’s affects are bearable and your hair has continued to flourish! I’ve got eyebrows now and short spiky lashes! Unfortunately the head hair continues to win the award for the worlds best mullet!! Xx
