This discussion has been locked.
You can no longer post new replies to this discussion. If you have a question you can start a new discussion

••• January Radiotherapy Club 2020 •••

FormerMember
FormerMember
  • 78 replies
  • 275 subscribers
  • 64690 views

Happy New Year  Fireworks 2020 Fireworks 

This is a place where you can ask for advice, give or receive support and just query anything involving radiotherapy. A couple of quick tips, if you're driving to your radiotherapy appointments each day, or any time, ask if your hospital offers free parking for people going through treatment, or if they have a voucher for a discount off parking fees, which a lot of hospitals do offer. Also, try to keep the area moisturised with a fragrance free lotion, to help with soreness. You'll find a lot more tips along the way on this thread.


For more tips, here's our Radiotherapy Tips Page and I'm sure you all have some of your own tips to share, and ones that people post that you will find useful.

External Beam Radiotherapy information link.

Here's also A link from the Macmillan Information pages, and this helpful video that some of you may want to have a look at.
This is a link to Decembers Radiotherapy Chat if you need to backtrack - It will be locked shortly for replies.

You'll always have your Macmillan family here for you, so if you have any questions, just holler 
Keep using the creams post rads as you will still be 'cooking' for a couple of weeks.

G n' J

  • FormerMember
    FormerMember in reply to FormerMember

    Hi #feemc

    That would be lovely, my treatment is at 3.10 so just after you. 

    I think there is a private message thing on here so I will message you on that.

    karen xx

  • FormerMember
    FormerMember in reply to FormerMember

    Morning I'll be warming up the bed for you lol. Will chat to you on private messaging, Fee x

  • FormerMember
    FormerMember in reply to FormerMember

    Love it when a plan comes together Right facing fistLeft facing fist

    What were the chances of that scenario ? Hugging

    G n' J

  • FormerMember
    FormerMember in reply to FormerMember

    Hello all =)

    I've got breast cancer secondaries to bones since had radiotherapy in lumber and thorasic back in june plus skull and neck july along with femur and this week part of  my back as struggling lot with pain.i hope you are all well I'd forgotten how uncomfortable flare up pain is and had have naproxin and added dose of oral morphine to my cocktail of pain relief. It also been uncomfortable this evening so mum checked and I'm all read round area as expected so put some e45 on it 

    Xxxx

  • FormerMember
    FormerMember

    hey Wave tone1

    I just wanted to give everyone an update, I’ve just had my 6th of 20 sessions today and so far it’s been uneventful Fingers crossed tone1

    I’m travelling daily (driving myself) from York to Leeds and taking advantage of the free parking in the multi-storey car park. It takes me 45 mins there, 10 mins appointment and 45 mins back. So far I’ve had no side affects, all I’ve done differently is moisturise twice a day instead of once. 
    I feel so well, I’m still going to the gym and doing brisk walking and light weights. I’ve also decided to go back to work on a phased return from next week. 
    I finally feel I’m getting my life back under my control and it feels good Blush

    Ruby x

    p.s. Also had my 2/18 herceptin injection which bloody hurt! 

  • FormerMember
    FormerMember in reply to FormerMember

    Hi All,

    Update, I’m now 7 days after 20 radiotherapy sessions and skin is peeling from the ‘ boost’ area. I’m using the cream but skin sticks to everything and rubs on all clothes. Found something amazing to protect sore area from clothes - a nappy sac ! (Yes those thin plastic bags) it doesn’t stick to creamed skin and clothes slide over it, so it’s tucked into my bra. My skin had been fine until 2 days ago, thought I was going to get away with it. Staff had advised me to get air to it, but topless in January is no fun and very life limitingRoflRofl
    Hope you are all managing the sessions, be kind to yourselves.

    Good luck

    Cate

  • FormerMember
    FormerMember in reply to FormerMember

    Well today's the day...1st session of 19 (odd number)...15 then 4 boost. Driving from Fife to Edinburgh which is about 50 minutes but might be speed restrictions on the bridge today due to high winds so will leave sharp. Meeting for a coffee which I'm looking forward to :)

  • FormerMember
    FormerMember in reply to FormerMember

    I woke up yesterday feeling nauseous. It lasted most of the day and I thought I might be 'in for something' as have read that nausea is rare with radiotherapy. Today the nausea is much worse....worse than anything I had with chemo. I've just taken a Metoclopramide tablet. I also have a slight headache. I'm so disappointed as I was feeling well, apart from my achy joints, and thought I would sail through this. Dreading the drive to Edinburgh today :(. Is anyone else experiencing nausea?

  • FormerMember
    FormerMember in reply to FormerMember

    I didn't.

    What did your team say ?

  • FormerMember
    FormerMember in reply to FormerMember

    Hi  

    I experienced nausea throughout radiotherapy too, I told the radiographers who said to take the anti sickness meds, the oncologist wasn’t bothered at all except to say it couldn’t be the rads at all. It probably wasn’t tbh, i still get nauseous occasionally now over a month later so I’m wondering if it isn’t some kind of reaction to the whole shebang. 
    not much help I’m afraid but at least it’s definitely just you! 

    ps only pop in occasionally as I’m trying very hard to move on, doesn’t always work!