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••• January Radiotherapy Club 2020 •••

FormerMember
FormerMember
  • 78 replies
  • 275 subscribers
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Happy New Year  Fireworks 2020 Fireworks 

This is a place where you can ask for advice, give or receive support and just query anything involving radiotherapy. A couple of quick tips, if you're driving to your radiotherapy appointments each day, or any time, ask if your hospital offers free parking for people going through treatment, or if they have a voucher for a discount off parking fees, which a lot of hospitals do offer. Also, try to keep the area moisturised with a fragrance free lotion, to help with soreness. You'll find a lot more tips along the way on this thread.


For more tips, here's our Radiotherapy Tips Page and I'm sure you all have some of your own tips to share, and ones that people post that you will find useful.

External Beam Radiotherapy information link.

Here's also A link from the Macmillan Information pages, and this helpful video that some of you may want to have a look at.
This is a link to Decembers Radiotherapy Chat if you need to backtrack - It will be locked shortly for replies.

You'll always have your Macmillan family here for you, so if you have any questions, just holler 
Keep using the creams post rads as you will still be 'cooking' for a couple of weeks.

G n' J

  • FormerMember
    FormerMember in reply to FormerMember

    Thanks justtheone.  Very helpful reply and very comforting xx

  • FormerMember
    FormerMember in reply to FormerMember

    Thanks Cate.  I wish I knew how to tag people.  Your reply was very helpful.  I will try the visual imagery xxx

  • FormerMember
    FormerMember in reply to FormerMember

    Hi

    To tag members just type the 'at' email symbol then without a space type their name.

    You should see a drop down list as you type but type it out in full as some members have very similar names.

    Note; this doesn't work with all devices - some Android users have found it either doesn't happen or is fickle.

    Give it a go to see if it works for you Slight smile

    G n' J

  • FormerMember
    FormerMember in reply to FormerMember

    Hi everyone 

    im starting on 13 January, I’m pretty anxious about it but keep telling myself it can’t be as brutal as the chemo was.....

    Also I have to stay at the hospital during the week as my hospital doesn’t do radiotherapy and I’m too far away to travel everyday so that’s making me nervous too.

    Nothings been said to me about using any creams etc. I’m at hospital this week for my first herceptin injection so will ask then.

    xxx

  • FormerMember
    FormerMember in reply to FormerMember

    Hi

    Are you having your rads in Edinburgh as you did for other treatment then ?

    Would be great if you had a friend or relatives in the area to avoid the boredom of being away from home Mon-Fri.

    As for creams etc if you click this link it's from very first message at the top of the page about rads tips.

    Waterjel R1 & R2 are really good but most GP's won't prescribe them as it costs around £70.  A high value (80%+) Aloe Vera kept in the fridge can be soothing but won't fix your skin should you start to get rads dermatitis.

    You may be advised about cream when you have your Herceptin but Oncology and Radiology are usually dif depts and may not have the best info ?

    Take care, G n' J

  • FormerMember
    FormerMember in reply to FormerMember

    Hi

    Yes rads at Western General Edinburgh. Had my surgery and chemo at Dumfries hospital.

    Thanks for the advice Blush

    xx

  • Hi If you get bored there are lots of buses to central Edinburgh and Princess Street from the other side if the main road. There is a big M&S on Princes Street with a great food hall in the basement, and a smallish Sainsbury's  round the corner on St Andrews Square. There's also a good sized Waitrose across the road and round the corner from thr hospital (Google it), which you might find handy as the food choices in the shops at the Western is limited (I never found the big staff canteen, which I imagine you'll be using). There is a free magazine called 'The List" which tells you about what's on in Edinburgh and is available from lots of places including galleries and museums.  Good luck with the treatment! X

    “Remember to look up at the stars and not down at your feet.  Stephen Hawking,
  • FormerMember
    FormerMember in reply to Londonmumof2

    Hi I'm starting rads at Edinburgh Western General on the 13th too! What's your time slot?...mine is 15.00 the first week. I'm coming down from Fife (50 mins) and wouldn't mind meeting up for a coffee before or after if you're at a loose end x

  • FormerMember
    FormerMember in reply to FormerMember

    Should also have said when I saw the consutant a couple of weeks ago (Marjory McLennan) she told me we would get 2 creams...a moisturiser and a steroid.

  • FormerMember
    FormerMember in reply to FormerMember

    Hi, ,

    I had to stay, well, not in hospital, but in a Lodge beside it, and not in Edinburgh, but in Dublin during three weeks before Christmas. I did similar to what Londonmum proposed to you: Went to the city centre, museums, galleries, shops, walked to explore places. That way the days were quite interesting, not so the evenings, though.

    I found radiotherapy quite easy. No comparison to chemotherapy. Wish you well with it!