Area of DCIS

FormerMember
FormerMember
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Hi All,

Just been for my pre op appointment this afternoon. I managed to get the letter sent to my consultant while there and it mentioned my DCIS was High grade and spread over 110mm. That sounds a lot to me, they said in my diagnosis it was spread from the front to back. I have to wait till 8th Jan for a Sentinel lobe removal of approx 3 lobes then wait again for my mastectomy and diep restructure. 

I'm a bit worried about the length of time I have to wait for all this, the nurse initially told me that as it was widespread and high grade they would do the mastectomy within 2 to 3 weeks ago and that was 3 weeks ago. Not worried till now but hating the wait!!

Has anyone had any break through over the waiting period for mastectomy?

XXX

Sam

  • Hi

    I think unfortunately that until you have your op no-one will know exactly your full diagnosis - I had a lump which when operated on and they then  found extensive rupturing DCIS which hadn’t shown up on my mammogram or ultrasound , so it is pretty impossible for anyone to say when the changes take place (I had only a week between my biopsy results and my op due to a cancellation so it it is highly unlikely that anything changed during that time) Most of us will probably have had the cancer growing over many months if not years , so another couple of weeks should not  make any difference. 

    The waiting is the worst possible time, my diagnosis was 3 years ago now and I had a delayed DIEP 2 weeks ago , hopefully I can now start to put it all behind me (apart from the medication for being ER+)

    Good luck with all your results and the DIEP 

    Jo x

  • Hi can I ask what treatment you had please xx

  • Hi Sam.  I believe the NICE guidelines state that you should have your op within 8 weeks of diagnosis.  I was 8 weeks and one day.  I then received a letter from the nhs apologising for not meeting the target.  I also had 110mm of high grade DCIS and had a mastectomy.  There was no break out cancer and as I decided against reconstruction, I didn't need any further treatment.  I hope all goes well for you xx

  • As I posted I realised this is a thread from a while ago. Shaz52, was there anything specific you wanted to ask about?

  • Hi thank you for you reply, was just wondering if radiotherapy, mine is moderate grade, is in the guidelines for treatment for dcis. Best wishes xx