Hi, I have just had the news that I have breast cancer and have been told they need to wait for results of my her2 tests. Any info about what these results mean would be gratefully received.
Hi and a very warm welcome to this online ‘club’. None of us would have chosen to join, but lots of support and friendship here. The results of the tests will affect what sort of treatment is proposed. In my case, my cancer type was hormone receptive (ER+) but HER2 negative (some sort of protein). So after surgery and radiotherapy I take hormone therapy in the form of a daily tablet. Cancers that are HER2 positive get different treatment. Once you have your results you’ll get a better idea of what lies ahead, the waiting is horrible, but the main thing to keep in mind is that the more information they have about your particular beast, the more they can tailor your treatment to getting rid of it!
Keep posting, others will pop in to share information and experiences, there’s always someone here who has a similar story. Gentle hugs, HFxx
Hi
welcome you've come to the right place for support and some answers .Please try not to google it's usually out of date . If you ask questions on here somebody will come along with an answer .
I was diagnosed with HER2 positive after my masectomy ,decision for op made on the size of cancer not the type.
HER2is a protein that attaches to cancer cell then causes it to divide and multiply .So can recur.
So treatment differs in as much as the treatment I receive is to prevent recurrence.
What we have all learnt is there are so many different Breast cancers and therefore many combinations of treatments .
That said it is So treatable there are many on here who are testament to how successful treatments are .
The waiting for results is the worst part believe me . It does get better once you know what you are dealing with . Have a browse amongst the threads and read some profiles .
Do keep posting
take care
margaret x
Thank you so much, I was in totally shock when they told me and couldn't take in or ask the right questions ! The wait is so horrible - hopefully results on Thursday and I will know more.
Tam
Thank you for your quick reply, it's just been a massive shock, the words you have cancer ! Couldn't really take the information in at the time and ask the right questions! Waiting is horrible.
Much love
Tam
Hi
My wife was diagnosed HER2+ positive way back in May 2012
If your results come back her2+ just reassure yourself this is do'able as the new targeted treatments for her2+ are game changers.
Take care, G n' J
Hi
i just wanted to drop by and say hello. I too was in your place a few weeks ago being told I had cancer. It’s such a shock! But you’re in the right place for help and support. The ladies here have been amazing ... and I’ve had a lot of meltdowns! Waiting is the worst. Everyone told me that too and I can now only agree. Once you have a plan in place you can get to grips with it.
you take care and post when you need to ... no matter what it is there will be some to help
Di x
Hi, thank you so much for your message, stops me feeling so lonely in all this. Hope your wife is doing well. I want to be brave for my family but so sacred of the unknown ! Hopefully my results ate back in time for Thursdayz if not I have to wait until next Monday or Tuesday Xx
Hi Tamlyn,
It is a big shock being told you have cancer, you're right and for a while it takes up all your thoughts and you worry about what might happen and it's difficult to think about anything else. Then telling your loved ones is hard too. Try to keep busy, go on holiday, that got me through the initial stages. Cry if you want to, it's a good release from the tension that builds up inside. Once you get results and a plan in place you will feel more in control. Eventually you'll find you think less and less about it and it just becomes a part of life, but you'll start waking up thinking of other things and begin to accept what is happening to you. I found that the more knowledge I had about it empowered me so I sent for booklets from Macmillan and read everything I could. This made me feel more in control and I could make more informed choices. Things will calm down. Until then I'm sending you lots of hugs.
Babs ️
Hi Di
Thank you for your message, know it's wrong but it's good to know somebody else is going through the same thing. I'm so scared and the waiting is killing me. How are things going for you? Well I hope xx
Much love
Tamlyn
Be kind to yourself and don’t feel responsibility for making extended family and friends feel better about your diagnosis. You will get the tilted head and ‘lucky’ comments when you are not feeling very lucky! There was a brilliant thread in here a long time ago about the tactless, well meaning comments you get when people find out you have cancer. A popular one was you wouldn’t need to shave your legs or wax!!!
Anyway ti reiterate the waiting is the worst part. It’s not a death sentence treatment has benefited from huge investment and research . Read members profile by clicking on their name and you’ll see where they are as most keep their profiles up to date
Carol xx
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