New to the group

FormerMember
FormerMember
  • 22 replies
  • 281 subscribers
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Hi Everyone,

I went to my GP at the end of August and was referred to the Breast Clinic for an appointment which should have been within 14 days.

Longest three and a half weeks of my life! Not knowing if it was just a cyst or if I’d be lucky to make it to Christmas was the most stressful part of the process so far.

I’ve now had my scans and biopsy, followed by an MRI - all of which has resulted in a decision to have a mastectomy with immediate reconstruction and removal of the sentinel lymph nodes for biopsy. I’m booked in for surgery on the 24th and I’m just feeling a bit numb. I’m a pretty logical and rational person so I’m not feeling any “why me!?” issues, just a bit down in general. 

I’ve read on one of the posts that someone had clear results for the lymph node biopsy but had radiotherapy after surgery anyway - is this usual? The nurse gave me the impression that if it was clear, the surgery should be the end of treatment - I’m a bit concerned  about that now, not sure why but I find the thought of radio- and chemo-therapies scarier than surgery.

I’m also feeling some resentment towards my family - neither of my sisters nor my mum has called me since I told them I was going for tests. They’ve replied to my updates by text and WhatsApp with “thinking of you” type messages but not a phone call from any of them. I know I can call them and that it’s better to light a candle than curse the darkness, but really not sure if I could stay civil with them! My sister had to have some cysts removed last year and I was there with flowers within a few days of her getting the news. I get breast cancer and not so much as a flipping phone call! 

Anyway, that’s me and where I’m at for now.

It good to have somewhere to have a bit of a rant when I need to if you all don’t mind x

  • Hi

    welcome to the community we rather not be in but are grateful to find .

    my story on profile feel free to read .

    your right it's the place to come to rant ,rave ,vent ,cry or have a laugh with others who know exactly where you're coming from cos that's where we've been .

    .Ask questions on here someone will have had the same experience and will support much better than outdated google.

    I had sentinel node removal no rads but having chemo plus others on profile . Mainly depends on type of cancer also pre/post menapausal 

    My op prior to treatment plan others get plan before again depends on how much info they get initially .

    im sure there be others along shortly 

    keep posting 

    margaret x

    One step at a time and ...Breathe !
    xoxox
    Margaret
  • FormerMember
    FormerMember in reply to Northerner

    Hi Margaret,

    Thanks for your reply, I’m feeling a bit better now - decided to call my sister rather than sulk, lol!

    Apparently she didn’t want to be part of the constant barrage of people calling and asking the same stuff as everyone else. She was a little surprised to hear that literally no one had called since I told them all 5 weeks ago.

    Also decided not to focus on what I might or might not have to go through after the op, I’ll try to focus on what I can control.

  • FormerMember
    FormerMember

    Hi lyingwitch

    feel free to read my profile, really sorry you had to join us but glad you have. You will get lots of support and advice here. I had mastectomy, lymph node removed in June, thankfully my lymph node was clear and it was such a relief has I had good clear margins. I was fortunate not to have chemo or radiotherapy, like you I was more worried about having them than having the mastectomy. I think it depends what they find in the breast in pathology after the operation before a definite post op treatment plan can be decided, I am on letrozole tablets. Hopefully you will get good results , stay positive, keep in touch with the group, good luck

    Rita x

  • Glad you're feeling a bit better ah ! Well that's the first problem sorted people just don't know how to react unless they been there. So yeah can understand sister .we decided on plan mine would text and if I wanted to speak or have company I would text back lol

    I also nominated a couple of friends in different friend groups to spread the word so I didn't have to constantly repeat . They passed on the message that I was having op ,still me ,didnt mind talking bout it but no cuddles and that slightly tilted head "How are you " lol

    If you have read my story you'll realise I didn't really have time to worry too much so just did one step at a time turns out it is the best way .

    just focus on now .

    margaret x

    One step at a time and ...Breathe !
    xoxox
    Margaret
  • FormerMember
    FormerMember in reply to FormerMember

    Thanks Rita,

    Just having a bit of a wobble - feeling better now but I’m sure they’ll be more!

    It feels good to have this group to vent in.

    thanks x

  • FormerMember
    FormerMember in reply to FormerMember

    Hi

    How are you recovering post surgery - Assume it all went ahead on the 24th ?

    G n' J

  • FormerMember
    FormerMember in reply to FormerMember

    Hi Dreamthief, 

    I’m doing okay, thanks. It all went very well, went home in the morning, then had the drain out on Tuesday and all looking good.

    I get biopsy results on Wednesday so fingers crossed Fingers crossed 

  • Hi ,

    Fingers crossed for you for Wednesday.

    Tina x

  • Hi 

    Good luck for tomorrow ..write your questions down more importantly write their answers Down .

    Enough said bout tomorrow ..what's your plan today to distract . Nice lunch out maybe bit of retail if you up to it . Couple of good DVD .

    Just something to distract for short periods of time .

    Believe us it will be better tomorrow once you know what next 

    Margaret x

    One step at a time and ...Breathe !
    xoxox
    Margaret
  • FormerMember
    FormerMember in reply to Northerner

    Hey Margaret,

    I did a bit of housework yesterday - just pottering, nothing heavy! Nonetheless, I did overdo it a bit so having a proper camping out on the sofa today. Superhero’s and fairy tales are the order of the day!

    Maria xx