None surgical treatment.

Hi, I was also diagnosed with stage 4 Her2+ breast cancer which had spread to my liver and bones in May 2014 and like yourself have never had surgery. I initially had 6 rounds of chemotherapy and since then have had targeted therapy every 3 weeks, I have just had my 91st infusion. Latest scan show NED also. I work, live life as normal and feel well, so much so that sometimes I think they've made a mistake  and I don't have cancer at all (if only). Anyway I hope you also continue to do well, not always easy to be positive is it? but we don't really have a choice, from time to time I allow myself to wallow in a bit of self pity but I think that's allowed. Good luck to you x

Hi there.  I have just had my first infusion of TDM-1 .  Eould love to know what your experience has neen and how you have managed.  Thanks

Hi, the treatment I have in Herceptin and pertzumanub not TDM-1, I think TDM-1 is the drug they give you at the hospital I am under if Herceptin is no longer working. I understand it is a new drug and therefore more expensive. As I am still doing well there are no plans to change it. They only side effect I have is an upset stomach sometimes usually the week following the infusion. x

Hello Jump123

I have been on TDM-1 for 10 months now. Did they give you a list of potential side effects when you signed the pre treatment consent form? The most frequent with me is fatigue.  You just have to take heed of your body and rest up. Don't try to fight it as it will make you worse! I went back to my gym far too early and suffered adverse consequences. Other than that incident I have been coping reasonably well. Embrace the resting time. I am sure you will have no problems. Good luck! 

Thanks.  I did sign the consent but can only remember that the list of potential side effects was very long.  I do srem to be suffering more tiredness than i did on lasl lot of chemo.  Thanks for your reply.  xx

Dear Emerald59

Thank you for your kind and thoughtful message and I wish you all the best with your own 'recovery'.

This is cancer and I never ever thought that someone could survive this deadly disease, least of all me.

I have about a week of nausea after treatment which is controlled via anti- emetics. I lose my appetite for formal set, proper meals and find healthy snacks and soups more palatable.

You're definitely correct with the imposter syndrome. I often find it incredulous that I am still here after the debilitating chemotherapy 18 months ago.

Good afternoon everyone , 

I would like to say a huge thank you for sharing your experiences. You are inspirational. 

Everyone diagnosed with cancer and like me  NED. (No Evidence of Disease ) lives in fear of metastasis. 

Thank you again and I wish you all well .

Love

Ruby Rose