bad news today and really really struggling..

FormerMember over 5 years ago

4 replies
278 subscribers
1515 views

I don't know what to do , or how to feel. About 3 weeks ago I had a bilateral mastectomy. One boob had to go after lumpectomy did not have clear margins and other one went, as a precaution. I have already have already had to deal with bad news from my breast surgeon after my original lumpectomy in June, as he had to inform me about the 2 other small cancers that were close to the original tumor. ( Hence the mega double mx) Am I making sense so far? I feel pretty shell shocked.. so probably not. I had a diep reconstruction. As many of you know this is quite invasive and scary. Anyway, I felt I was doing really well. Recovering, and managing to go for walks. Feeling pretty up-beat about everything really.

Today, i had my histology results, and in the, what we all thought, was the good boob, there was an even bigger tumor that had been removed. It is close to my skin, and as I had a skin sparing mastectomy, I am going to have to go back in next week, for them to dig around in the area close to the skin, remove some of the skin and have some of my lymph glands removed. It looks like I will now need chemo as well. How can I get my strength back? How can I feel strong again. How can I go through another operation. I feel that all my positive thoughts have been sucked out of me.....

Any words of advice, would be welcome..

With love

Sukki

seaspirit44 over 5 years ago

What a terrible shock, takes all your painfully built up energy and resilience, What a good decision to have the prophylactic mastectomy, but awful that you have to go through another op. Big hugs xxx

I had tumours in both breasts, and had lumpectomies on both sides, with node sampling.. That was a shock in itself, only knew about the left one, had to go back and have left mastectomy with bilateral axillary clearances, followed by chemo and bilarel radiotgerapy. Apart from the shock at finding the other tumour and the spread, my recovery was very good. I had lots if emotional support, I am still here 10 years later, and so far in remission.

Keep posting on here, and ask fir help when you need it. Xxxx

Onwards and flatwards (don't do hills) and keep walking if you can!

Northerner over 5 years ago

I don't have any words that could possible make sense of what you are going through . Hopefully someone with a similar story can help you with your questions about recovery from diep .

All I can Offer is the comfort that we are here for you to listen and where possible offer advice . I am sure in the knowledge that we are all stronger than we think , when we are faced with this crap.

You will get thru this ... think about what you have achieved already !

Keep posting .If you can't sleep come on to the Awake thread nearly always someone there no matter what time .

margaret x

One step at a time and ...Breathe !

xoxox

Margaret

FormerMember over 5 years ago

Hi Sukki, you’re going through the toughest of times, but the strength you’ve already shown will see you through. I had lumpectomy after chemo to shrink fairly major tumour. We then found out it was in a lymph node, so more surgery. Each time, you get knocked down, it’s such a body blow, but you power through. My type was also misdiagnosed and I was given 6 months of drugs I shouldn’t have had and now have cardio issues. But I’m here - still scared, fearful, exhausted but here and so proud of coming through it all, just as you are and will do, Everyone who deals with this shitty disease is an absolute hero. Sending you much love and the biggest of hugs.

FormerMember over 5 years ago in reply to seaspirit44

Thank you for getting back to me. I am just struggling so much with the fact that after having had a bilateral mastectomy, I have to go back in for another operation. I have been so positive, but I am really struggling now.. Thank you, though, for getting back to me.. xx

More from this forum

bad news today and really really struggling..