Well hi everyone I've just found this wonderful site and been reading what you have all been writing about your experiences. Most of whats written using codes I'm not yet familiar with but I'm sure it will become familar soon enough. So here i am but I'm only the stage of being told yes they are certain a cancer is there but now im waiting on the results of the 5 biopsies to determine the best treatment. I'm so scared. Please help
Hi LizzieGP
It is very frightening especially the waiting for results. Don't worry too much about the codes, it will become more clearer as time goes on. Your specialist will explain your diagnosis when the results are through and this is when you will become more familiar with the words/terms etc they use. I had my diagnosis in April and each day and night I was so scared and I am sure you will have other people on this site telling you the same. Get all the support that you can from friends and family and from all the wonderful people on this support group. Have you told anyone yet? Your not on your own. Take a day at a time is the best advice I had , treatment is really good today so as hard as it is try to be positive and not think of the worse. Easier said than done I know, keep in touch
Rita x
Rita thankyou for replying i wasnt sure anyome would. Yes it's the scariest time ever. I have told everyone i felt i wanted and needed to tell so thats one of the difficult tasks over even tho i dont have much info to give them i just wanted to get it over with. Just reading all these lovely positive stories and your reply has already made me realise im not alone. Thank you x
Hi
When do you get your results? Let us know the outcome and we will support and be here for you. Take Care, message anytime.
Rita x
Hi
My story is on my profile .
First of all welcome to the best support group that nobody really wants to be on . This ia the best place to be to share with people who are and have been through the same feelings an emotions . You can come on at anytime someone is usually here to help support or just chat or listen while you rant
This is the worst time the waiting in between appointments or waiting for results . So much better when you know what is happening . Ask all the questions you need to of the professional or here you will get answers on here from people who know what happens they have been there .
Try not to google a lot of info is out of date .
I like you need to tell people all family and friends were told what I did when I had diagnosis was nominated two friends in different ares of friendship to spread the word so that awkward first meet wasn't too bad .
but at this point in time for you I'd take a deep breath and take a step at a time . It's going to be a nice weekend go out and have a nice distracting time .
Someone else will be along shortly I'm sure maybe someone like yourself a newbie to share .If you havent already fill in your story on profile it helps to read others stories . If you can't sleep there is usually someone on the Awake thread mind you most of them are proud to be called fruit loops .
margaret x
I'm tensly waiting on a phone call to get the biopsy results from the breast cancer surgeon some time next week so however long it takes from the phone call to appointment im not sure but I'm dreading it as im sure everyone on this site has had the exact same experience.
thanks Rita x
Hi Margaret
Thankyou so much for your reply too. Wow what an amazing site this is for people like me entering the unknown to see such lovely people reacting so positively
Thank you i intend to take all advice given x
it depends which area you in for app wait but all areas try to be as quick as possible . Do not panic if you are asked to attend next morning . I got quite blasé about 9am next morning appointments . If you read my story you'll see how quick things can go . Cancellation for Surgery and surgeon off on holiday next day lol.
Read my profile ! It’s not a death sentence x
Also of they don’t ring you ring them. Last year at 3 year check they did biopsy but didn’t ring. I rang later in day and biopsy fine but they wanted to see me again to double check!
Hi I am relatively new too. I was diagnosed July, op in August and waiting to start chemo therapy. The waiting for results is very hard but things do move quickly when they start. I found telling people really difficult and still do. The unknown is scary but there is some great support and advice here and lovely people to chat to who have gone through it all. Don't Google things. You will scare yourself and untill you know what you are dealing with the information may be wrong and out if date. Plus everyone is different. Ask lots of questions of the medical staff. No question is silly or irrelevant. Like others I am happy to chat if it helps. Xx
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