Pain in middle right side of Back, around to front

Hi 

I've had pain in the Mastectomy site which radiates round the side and into my back, recently had a Bone Scan due to my concerns and it came back OK. My Consultant said there can be issues due to the nerves being damaged during the operation, also if you had Radiotherapy that can make the bones fragile, which in time may cause pain? 

I hope the results are good when you return home. It's an awful situation we are in and at times it becomes overwhelmingly stressful due to the fear of it returning. 

Easy to say but please try and enjoy your Honeymoon.

Best Wishes.

Hi

Congratulations on your wedding!  It's so hard in the years after treatment, trying to keep your fears in check.  Please do try to park it as much as you can whilst you are on your honeymoon.  It's such a special time for the both of you, you don't want to look back and regret all the worry.  I'm saying this as a total worrywort myself and I've had a few panics since finishing treatment last year.  Actually, I think you have done the hard bit which was to take your fear seriously and actually get tested.  I hum and haw with any niggle that I get but have learned, the further I get on, to just give it a bit of time first.  Gradually, I have got more fatalistic about it - which is good thing for me!  It'll either come back or it won't but worrying about it isn't going to make a blind bit of difference to that outcome.  That's sort of  helped me sort my head out a lot. 

Please enjoy this time with your new hubby and all the best for the results when you finally do get that appointment when you're back. 

Best wishes,

Linda xx

Hi

thank you for your reply.  I didn’t realise the Mastectomy could cause issues that develop later. Or the radiotherapy.  So that’s helped me feel a bit easier thank you.  Im sure I’m just over reacting, 

It is overwhelmingly stressful as you say, very twinge has me running to the dr. 

Thank you you I will try and just get on with my honeymoon, xxxxxx

Thank you Linda. I guess I have always been a worrier. I lost my partner to cancer in five days flat from diagnosis to him passing.. that was in 2015. Then got it myself twice. Parents both passed from it too in 2006.  So I have had to face it with close family and twice myself. I’m just scared. For myself and for my new husband. 

I will try to worry less but it’s not easy.  I feel like the sentence has already been given and I’m just waiting for the punishment to be carried out.  It’s doing my head in. 

Xxxxx

When I had my staging bone scan in May there was a white area on my spine where I knew that it was damaged from a fall. The mastectomy area was a white rectangle as it shows faster cell growth.  Where were the white areas,  as they could be from 'wear and tear'?

I can understand why you worry when you’ve lost so many people close to you to this terrible disease. It’s traumatising. Have you been able to talk over your feelings with anyone, eg at Maggies  or MacMillan? It would help just offloading to someone xx

Hi Londonmumof2. Thank you for responding.  It appeared to be around the lower ribs and spine. And some in the hip area.  Xxxx

Hi Aspen.  Thanks for replying. I haven’t spoken to anyone. I feel such a fraud as I’ve had so many issues of my over worrying about it being back.  I haven’t ever talked to anyone since I had PTSD counselling from a hospice after the trauma of losing my partner so suddenly and shockingly. I’ve not wanted to moan again. I’m not sure I wouldn’t fall apart if I open up xxxxx

Update, apologies for not updating. Unfortunately I now have secondary breast cancer. Yeo spots - one in spine and one in rib.  So had 6 chemos so far. Treatment now not cure.  But I’m trying to be positive as I can.   I guess my TNBC  is harder to fix than hormone receptive ones.  Lockdown is so hard as the only way I get through is to keep busy.  I’m  doing art, baking, gardening, walking on the. Treadmill abs still time drags xxxx how are you all coping?

Hi,

I'm so sorry to read your update.  Was there a TNBC in your breast?  Lockdown is hard enough let alone trying to deal with secondary BC, I agree keeping busy and being able to get outside does help to a degree.  

Sending love.