My test results are taking ages.....

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I know this is the hardest part, my biopsy was done on 22 July and I have been told on 31 July that I have a 5cm grade 3 tumour needing mastectomy & chemo. They didn't have the HER2 results which will determine which way round I get the treatment. A week after that and more than 2 weeks after the biopsy, they still don't have my HER2 result. I'm imagining all kinds now, is there something untoward, why aren't they telling me? What is taking so long? I just want to know what's happening next.

  • FormerMember
    FormerMember

    Hi

    My journey was a little different to yours in that I had my mastectomy before getting all the results and mine was delayed by a week and took 3 weeks to come in.  Apparently its normal for the HER2 result to take 3 weeks at least.  Hopefully you should hear soon and yes, the waiting is the hardest bit of this horrid rollercoaster.

    Sending you hugs

    XOXO

  • I saw my surgeon 2 weeks aftet my biopsy and the HER2 results (from ther biopsy done at a breast testing centre) only arrived that day, and he asked thr nurse to check I'd they'd come since morning. They had ther ER and PR ones within 5 days though.  

    “Remember to look up at the stars and not down at your feet.  Stephen Hawking,
  • Thanks both for replying. Feel a bit better that 2-3 weeks could be about normal, still hope it's today though!!! Xx

  • So yesterday I got some results back - my bone scan was normal so good news! My HER2 came back positive, so I will have chemo first before the op and I'm seeing the oncologist on Tuesday to discuss. I know that means it's more aggressive but I am kind of reassuring myself that maybe this means it has grown to the 5cm size quickly so it hasn't been lurking for a long time and I found it as soon as I could have done. My nurse said that both hormone receptors were also positive and she said that was good. When I asked why, she said because I will then probably take hormone suppressants for the next 5 years and this means a good chance that it won't return. I also had a CT scan yesterday and will get those results on Tuesday too. As long as I find out that is also clear, I will feel then that at least I know what I am dealing with.

    I am surprised that I actually feel quite upbeat. Maybe I will be scared once I go to start the chemo and maybe a little worried how poorly it might make me feel, but at least now I feel like things are starting to happen and we are going to get this sorted.

    Hugs to everyone still waiting for results (((()))))

    xx

  • FormerMember
    FormerMember in reply to West End Girl

    Her 2 is aggressive, but that also means it’s greedy and gobbles up all the chemo. That means chemo works really well at killing it off. I had a rough time in chemo but I got a complete response (no cancer left ) so it was worth it. Lots of people suffer very much less and don’t find chemo all that bad. Hopefully you will be one of those!  If you do have a tough time with chemo, just keep reminding yourself that it does pass, and then you will get better.   Good luck xxx