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**AUGUST CHEMOTHERAPY CHAT 2019**

FormerMember
FormerMember
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Hello lovely people, and Welcome to the August's Chemotherapy Chat! 

This thread is for all of you soldiers, going through chemotherapy to take a look at, ask questions, answer questions and be there for one another in a way only you guys know how. 

If you want to find this post quickly, you can hit the 'Save In My Favourites' button. 

For all of those of you going through chemotherapy, you are superstars. You are amazing, and you are fighting each and every day, you are my heroes. If you need any extra tips, our Chemo Tips Page is something you may find very helpful, and something that you may find you would like to share with others who are also going through chemo. One top tip, ask about parking at the hospital you are being treated at; for some Cancer patients parking is either free or discounted (big discount!) So it's worth asking about. 

To get a sense of how the thread works, here is a link to July's chat which will be being locked from replies soon, but have a read anyway if you'd like to. 

Remember, you're never alone, you have us! And, just try to focus on what your chemotherapy is doing. Its hopefully kicking your cancers butt. 

I hope you are coping with me doing these! And I hope all of you are doing as well as you can do while going through this tough part of your journies. 

Happy August Everyone, 

Lots of love, hugs, light and healing to each and every one of you. 

Alex xxx

  • Gosh Fee, ther chemo is really knocking your system in a big way! Fingers crossed that the blood results are ok. I know mine would be ok, but wish they'd be delayed,  as I need to go to work,  couldn't today because of my daughter's GCSE results and going to her new school,  can't tomorrow because I have a massage,  then blood tests and PICC line maintenance,  then it's bank holiday and chemo on Tuesday. I ordered about £750 worth of books which I would like to catalogue, and term starts in  12 days.....

    In other news,  I'm getting bald patches around ther sides of my head where the nurse didn't wet it properly  the top is fine and the bottom is also fine where I soaked my fingers and tried to wet the bottom of my hair. I look like a barbie doll from Poundland. Girls MAKE SURE YOUR HAIR IS SOAKING,  AND NOT JUST THE ROOTS! X

    “Remember to look up at the stars and not down at your feet.  Stephen Hawking,
  • FormerMember
    FormerMember

    Hi all,  just had my second EC chemo yesterday absolutely knackered today.

    First cycle was a bit of a roller coaster some good days where I felt I could do anything and then days when me and the cats just snoozed

    I got oral thrush which responded well to treatment but got me a bit freaked out as blood tests showed my neutrophils at 0.7 on day 15 but recovered to 1.98 before treatment.

  • FormerMember
    FormerMember in reply to Londonmumof2

    I’m in too! Lots of great tips and positive thoughts! I started the first cycle of a 4 x EC then 4 accelerated pax regime today. Tried the cold cap - not too bad to tolerate. Feeling quite sick tonight and a headache so will try an early night and see what tomorrow brings. Love to all of you out there too. 

    Jools xx

  • FormerMember
    FormerMember in reply to FormerMember

    Hi I've had the same issues as you with low neuts on my first check but came up enough on the day so for my 3rd cycle (10 days ago now) I was given 5 days of jabs to give my bone marrow a boost.  Seems to have worked as I ended up in hospital on Sunday night with high temp but when they did my bloods it came back as 2.5.  Is this not something you've been offered?

    XOXO

  • FormerMember
    FormerMember in reply to FormerMember

    So the repeat neuts came back at 0.67.....that's the smallest increase so far....they've always at least doubled and I've still managed to get the chemo. Didn't speak to chemo unit till after 6 and the nurse phoned my consultant and I've still to go in tomorrow for my first Perjeta and Herceptin...so at least something's happening. They don't seem to use the booster injections up here so much, maybe they'll consider it now.

  • FormerMember
    FormerMember in reply to FormerMember

    Evening everyone.

    Had good day out today with daughter wedding dress fitting she looks beautiful but guess I’m biased. Went out without wig on and asked dress fitter if they did fasinators she said they can make me one n had few I could look at. So wig went on and they were shocked at how real it looked and another mom n bride in shop also said the same. Boost for me in big way. Hair is definitely getting thinner well bald patches are starting to show as got hubby Monday night to shave it off as was coming out every time I touched my head, felt good taking control of the loss ourselves. 

    Outfit I ordered for the wedding came today! Going back tomorrow as look like sack of spuds in it as went for ‘jumpsuit’ as don’t wear dresses normally! So another day shopping tomorrow looking for outfit for mother of bride.

    Start my injections again tomorrow to boost immune system. Last time I did them in a morning but felt rough couple of times after them n ended up asleep so going to try doing them in an evening at least if I fall asleep doesn’t spoil the day.

    sorry for essay ladies think I’m off for some cheesecake, coffee (decaf) then bed xx

  • FormerMember
    FormerMember in reply to FormerMember

    Hi  

    How exciting to be mother of the bride. Glad you feel good about your wig, i had so many people tell me how they loved my hair, it never happened before when it was actually my hair lol

    The injections, i use to do before i went to bed. My nurse told me to take them out of the fridge at least 30 minutes before i did it, otherwise it sometimes stings. She also said that if they made my bones ache i would be asleep so hopefully wouldn't know.Plus if they send you to sleep thats a bonus xxx

  • FormerMember
    FormerMember in reply to FormerMember

    Hi , not been told about aching bones but I’m hoping having it late will help me sleep better... I know I struggled sleeping the week after my first chemo don’t know if it was steroids or what but we will see when start injections tomorrow how I get in.

    Yes wedding is only 7 weeks away, but having wedding on 11th Oct then reception week after on 18th Oct so hopefully it won’t be too tiring for me, least I can nap after wedding and before reception xx

  • Hi

    I had my first EC on Wednesday .Fine throughout injections until very end then got stinging eyes and he ache took painkiller and sat for ten mins in unit .It then settled .tried early night last night as felt wiped out .I was awake nesparly all night ..blaming steroids so took them at 10.30 am .

    today been good took nausea tab at 7 am got up at half past and ate breakfast .Fatigue has been coming in waves but I've just gone with it and sat down with feet up until it passed .

    hope you continue to feel not too bad . Just a tip I was told If I felt the need for painkiller try to get temp . First just in case it was infection and painkiller would mask rise in temp .

    Must say what I've found today is headache went away if I rested when body told me to .

    Be kind to yourself 

    One step at a time and ...Breathe !
    xoxox
    Margaret
  • Morning everyone! Hope the weather here is finally improving, had the fire lit for the last couple of nights it’s been like October.

    Going to my uncles funeral today, taking my mum, it’s gonna be emotional Sob. But hosting grandsons 1st birthday party tomorrow afternoon, lots of young people and kiddies, as well as both sets of great grandparents. Fingers crossed for good weather so they can all go outside!!

    Cold all but gone, still got the cough and for some reason can’t string a decent sentence together without having to cough! But I’ll take that.

    I’ve said before how things vary so much from area to area but it’s really true isn’t it? Take the injections afterwards - like fee they don’t seem to be given as matter of course where I’m being treated yet at my local nhs hospital they appear to be given to everyone, whether needed or not.

    Then there’s the to scan or not to scan. I’ve only had the ultrasound at initial diagnosis, even though 3/4 nodes did turn out to be affected I’ve not had a scan since of any kind to check there’s nothing else. I asked why and they said it was because they were sure there’s nothing else. Yet I know that at other hospitals scans are more or less a given.

    And then there’s the whole what you can and can’t eat issue!

    I did think it was because I’m more or less fit and healthy with no other health issues at all but on chatting to others I then thought it was because I’m a private health patient (hubby has insurance through work) as that’s why I don’t have a breast cancer nurse or anything like that. But now I think it’s just up to where your treated.

    so sorry this has turned into an essay!

    Hope those side effects stay minimal for everyone and don’t forget the nana naps!!!