Letrezole

Hi Moomy! 

I'd love to read that article if you can remember where you saw it! 

Ask if you can be put on Zoledronic infusions instead Moomy!

Heres the article

Hugs xxx

Hi moomy

I typed it all out and got the website as a link - Just click / tap here

Must admit it is a bit of an unnerving read :-/

Hugs, G n' J

Hi all .

I've dripped and hobbled all day today. We have had a busy week so I'm hoping I'm just a bit tired. Not a lot planned for the weekend so I can keep my feet up.

I'm going to read the article now, I hope it's not too depressing.

I am about to start taking Letrozole. Frankly I am terrified!

Do any of you take any supplements to counter some of the SE's? I have read about magnesium being useful and omega 3.

Also, is there a preferred time of day to take them?

Any thoughts?

I found taking it at night was better. If you do have problems try a different brand or different AI until you find one that suits. I started with letrazole generic, then switched to Femara, then changed to Arimadex which I’ve been on for a few months now. Everyone reacts differently so don’t worry. I know people who don’t have problems with it at all. I get the flushes and bones/muscles hurting but it is better than it was at first. If you’re not happy speak to your oncologist. 

I do take Omega 3/6 and multivit as well as B6 but again good to check with onco.

Best of luck.

Hi

Please don't be terrified. Not everyone gets everything or even any. I did read today that some of it isn't actually a side effect of the drug. The symptoms are more due to the hormone being reduced.

I was very late going through menopause about 57. The doc did say that was good at the time because you don't age. I wasn't sure what he ment then but I do now. Another doc said things dry out without the hormones , including the joints. The trouble is oestrogen also caused the cancer. 

I did start taking mine in the evening and I thought the sweats got less, but the weather changed at the same time so hard to say.

I've only been on it for a couple of months so I'm hoping things improve.

You've got this far, it's just another step.

Hugs

I have been on Femara since January. I do get sore joints, especially knees, but had been quietly satisfied that it was bearable.  Until last week!  I woke up with trigger thumb one day. My wrist couldn’t be trusted to hold up a mug of tea. I couldn’t get up the stairs.  I felt awful.

When I started letrazole I also started cod liver oil and glucosamine with condroiton, (on recommendation of someone on this sight.) About a week ago I ran out of glucosamine/ condroiton.  When I realised the coincidence yesterday I rushed out to get some more. 24 hrs later, on the maximum dose for 2days now, I am back as before. I really cannot believe the difference it made. 

So I would recommend trying glucosamine with condroiton. I just bought mine in Superdrug. I won’t be running out of it again.

good luck xx

Yes , I take glucosamine/chondoitin, and so does moomy, find it helps xx