lost our way a bit

Hello,

Unfortunately your story is very similar to many. I suspect very few patients stick to their original plan without interruptions and changes ' en route'. In your wife's case, the lesser treatment may lengthen the time taking the drug but it should also lessen the side effects. In my own situation, the taxotere has left me with permanent problems. It was my own error.....I thought the side effects would correct themselves so I didn't tell anyone until it was too late. The changes in your wife's protocol should mean she doesn't have this complication.

The taste problem does continue for a while too although gradually I found flavours came back. I remember ginger/ lemon was nice to drink but I can't remember particularly liking any foods.....just putting up with not enjoying meal times.

It is four years since my diagnosis and despite some very unpleasant reactions to the treatments, I am fine today and the cancer is still clear.

I hope all goes well for your wife's future recovery.

Karen

I had 3 treatments of just EC, no F. All was pretty good with that. Then a few days after first T sessions, I got really bad stomach cramps and awful aches and shooting pains in my legs. Felt pretty rough for a couple of days. I also developed Hand, Foot Syndrome. I had the metal taste from the beginning of treatment but would wear off after a week or so, it didn’t while I was on Docetaxel, all food tasted of nothing, it was awful.

The 2nd T wasn’t actually as bad. I didn’t get the cramps or the shooting pains, I wasn’t sleeping well though and again 4/5 days in, I was very tired, struggled to get out of bed etc. The last T was ok, but again 4/5 days in felt tired and and achy but Dr warned me with the accumulation of treatments it was bound to happen. 

Good news is tastebuds come back again and food tastes great.

I hope your wife is ok, it’s very disappointed when things don’t go to there original plan, but I have rarely seen or heard of anyone whose plans or treatments didn’t change for some reason, just reassure her that it’s all in her best interests, even if it doesn’t seem like it now.

Best Wishes x

Thank you for your message. I didn't really know what to expect writing on here, but is easier than doing the group thing so thank you for this.

We know we are not alone but sometimes the not knowing is quite painful

Thank you once again

Dear Beachwalker19

Thank you for this information. Your symptoms do sound very familiar which I have shared with my wife. It's very hard to keep her spirits up at the moment but good to hear of people who have gone through the same

Thank you for your help

,

You are very welcome. There is usually someone around here and lots of people have some really good advice.

I didn’t think I wanted or needed to join this group, I was fine and coping ok, however I can honestly say I’m so glad I did. The people here have been through the same or very similar circumstances

Let us know how you are getting on.