I too was Invited to join but. because I need ibuprofen to ease joint pain I was given the no thank you card
On a personal level for me .... if I can do a something that would help others I would . I believe those who have gone before us did so that we can be here
Leollady56
Life is like a boxing match, defeat is declared not when you fall .....But when you refuse to stand up again .......So, I get knocked down but I get up again. x
which is very interesting and supportive of the trial, looking at past data to support it. As someone who had the surgery last week (after macrometastasis on 1 out of my 2 sentinel nodes) and wondered about radiotherapy instead, I would have gone on this trial (probably!) had my hospital offered it. It's early days for my surgery outcome, but 6 days later I have the drain in place collecting 70-80mls a day, restricted arm movement with pulling when I try to move my upper arm above shoulder height, and the exercises give me nerve pain when I do them daily x3 as instructed. I have to wait a day, then it goes away, but it's going to be a long and unknown process recovering. It's so strange getting a pain under my arm when I move my head across to the other shoulder!
I think that it really depends though on how you feel about it, as if you would be anxious doing it then that could impact on your health. Maybe read up on the side effects of surgery (and look at pictures of what it will look like after with a section of armpit missing), and see if radiotherapy is an option too, as it's nearly as good without the same level of issues afterwards.
“Remember to look up at the stars and not down at your feet. Stephen Hawking,
