New diagnosis triple positive

Hello can i first welcome you to the community none of us want to be members of but under the circumstances the best place to be.

I can't help much with the drugs as i'm triple negative so my treatment will be different to what yours will be.

but i'm sure someone will be along soon who have had herceptin. 

It's all scary and we've all been there and that is why this place is good as the people you talk to totally get you. I've been through the losing my hair and side effects. It's tough but it's doable and when you're out the other side you will look back and be very proud of yourself.

I would also say if you have any questions you aren't sure about ask here or ring your breast care nurse. They are brill and can help put your mind at rest. Take each step at a time and try not to think too far ahead. Remember the people who are looking after you it is their job to get you better, they do it every day.

Come and talk to us, rant, scream and cry. It has even been know for us to have a laugh sometimes too.

Take Care xx

I was.her2 pos and er pos, grade 3. You will get a lot of treatment because they treat all the different types.  But the good news is that they can do the treatments because your cancer is responsive.  I had 6 months chemo then mx, then radiotherapy.  Still on herceptin. When I was diagnosed I was classed as very high risk of recurrence.  After so much treatment I am now officially  “likely cured”.  It’s a long road but there is light at the end of the tunnel. Herceptin is a game changer for her2 pos.  You can do this.  xx

Hi Sandy,

Thank you for your reply, this gives me more determination as there's an end to all this, you hear and read horror stories of Her2 positive and don't know what to believe or understand.

I know everything I'm gonna go through is to make me better and lucky to have herceptin. Hoping all my other scans come back clear.

I'm so pleased to hear ur back on track and doing amazing.

It's good to have the support of others and hear your victories

Hannah x

The way I understand it, the her2 cancer is aggressive, and so it is greedy. It gobbles up the chemo and that kills it!  

I had a complete response to chemo, confirmed after surgery when there was no cancer left in my breast or nodes. Herceptin is an extra insurance against it coming back. 

My surgeon said that before herceptin the outlook was worse for her2 pos patients than for her2 neg ones. Now we have herceptin and perjeta and the survival curves are more equal. 

Chemo is not fun, but it does pass.  you can do this. xx

That's great you had a complete response, I've heard so much good stuff and feel lucky that herceptin is now avaliable.

I'm 39 and although I know she doesn't come into it when it comes to telling people, but I'm struggling with people's reactions, I know it's because they care but the more "OMG, oh no, I'm so sorry....etc" is not helping me stay positive. Did you experience this at all? 

Thanks 

Hannah 

Hi Mgducks  - I knew that I wouldn't be able to handle anyone saying sorry and so I have asked for no-one to say that to me (or I knew it would make me panic).  I even stopped a friend from hugging me at the school gates because I didn't want to stand there in floods of tears and I knew that her hug would bring them on!  It's hard for others to know what to say or how to react though isn't it?  Good luck with everything.  I'm still waiting to hear what my Her2 status is but it's good to hear about the Herceptin working so well.

Best wishes x

Hi I have just been diagnosed triple positive, strongly hormone receptive on both receptors can I ask how your treatment went please  best wishes xx

Hi I am triple positive, reading this and other things has made me feel so much better, mine is grade 2 stage 1 20mm lymph nodes clear. Actually I know when you hear chemo you panic but knowing I am getting that as well as herceptin and all indications so far show it may be just in my breast makes me feel better.  My tumour has been removed in my surgery. How are  you doing now has your treatment finished. Best wishes xxx

Hi, 

Im not triple positive, but OR and HER2 positive and had chemo first. My tumour was grade 2 and 2cm. The chemo did its job and by the time I went for surgery there was nothing left of it at all - complete pathological response. I had 3 x EC and 3 x Docetaxel with Herceptin chemos. 

I just wanted to let you know that the new treatments really do work and although it’s a rough ride, it’s doable. Wishing you all the very best. 

Ruby xx

Hi that's really reassuring.  Mine was grade 2 and 20mm  I do not think alot of hospitals take pr into consideration sometimes. Mine was 7  so mine is really similar to use. I have had my first cycle of chemo and it wasn't to bad I have my next cycle tomorrow thank you xxx