Just found out yesterday

Hi Bev, I just want to say hello and I’ve read your post and know how upsetting it is. There will be folk on here that will be able to give you good advice, I’m afraid I’m also new to all this. I found out one week ago and had my op yesterday.  It is a scary time, but also amazing the treatment that is available now. Stay strong. Maybe you could phone the breast clinic and have a chat with someone there, I’m sure they’d be more than happy to help.

Really that quick ? What op did you have ? She mentioned either removing the disease or removing the breast 

Hi Bev,

Firstly so sorry you find yourself here.  I felt exactly the same.  I have 4 children and while two are older, my youngest 2 were 15 and 12 at the time. I was so glad it wasn’t any of them but very scared. 

I can only tell you what my experience was, I had mammo, scan and biopsy. The Dr told me it was Breast Cancer there and then. Told me the team would meet after the biopsy results were in which would be about 2 weeks. I went bk on 15th Oct and was told it was ER and PR+ HER2- I was told due to the size of the tumour a mastectomy was the best option and he could operate in the 20th, I was grateful i only had 5 days to wait, hubby wondered why so quick. 

Best thing is you have set the ball rolling, the team will always do what is best in your particular case. Waiting to hear bk is the worse bit. You feel in a sort of limbo now as it’s unknown territory.

If you want to know anything ring your breast care nurse or clinic. They will let you know what is happening and when you can expect to have your results x

Hi thankyou for your response , sorry to hear about your news also , I do think they are gonna say my best option is to  have a mastectomy also coz the size of the Tumor is quite large I’m worrried at what stage they are gonna say it is at , I noticed the lump weeks ago and choose to ignore it thinking it would go away but it didn’t , I did ask would that if mattered but she said no , I pray I g it hasn’t spread any we’re else do they tell you at the biopsy results if it has or not ??

Thank you, I’m through chemo now, had my last one end of April I’m about to start radiotherapy.

I first felt a lump end of July and didn’t think anything of it as I’d had cysts before. We went in holiday in the August I realised it was getting bigger but knew I was going to see a nurse in September so left it till then, so I know how you feel as I waited months mine was over 6cms. 

No one mentioned a stage to me just a grade which was 2. I just got the news that my nodes were inconclusive, after fine needle aspiration it was confirmed the lymph nodes were effected. Then after my op I had a bone scan, abdominal ct scan and a chest ct to see if it had spread to anywhere else.

Im sure they will let you as soon as they can, if you want any info though give them a ring x

I’ve tried ringing I can’t get through but I’ve left my number for them to call me back , I go back next fri for my results but I’m due to go on holiday on the 14 th June will they still allow me to go do you think ? I’d hate to tell my family I can’t go with them 

My consultant asked if I had any holidays booked. I’m sure they can work around it for you. 

Hi Bev

I did not feel any lumps but a routine mammogram picked up 2 areas in  my left breast, thankfully they ae both in very early stages of breast cancer and was told initially I would have a lumpectomy and radiotherapy. The Doctor I am under then suggested MRI , this week I have has further  biopsies as the MRI has shown another area in my left breast. I am awaiting a date to have a mastectomy, hopefully this will be confirmed tomorrow. Like you I feel well in myself, its the anxiety over the last few weeks that is making me feel tired, not sleeping and really scared and thinking I was going to die  . I understand totally how you are feeling, I have had so many emotions since I was diagnosed on 29th April 2019. Every day has been stressful. I just want to get the treatment now and get normality back in my life.  My husband and children are devastated but trying to be strong and reminding me to be positive. We will get well and hopefully we will become stronger people after this challenging time in our lives. Keep us posted on how you are getting on, we are all here to support each other

Rita x 

thanks for your reply rita , its 3 days now since i found out and i really dont no how im feeling , i feel sick with worry , alls i keep thinkin is i dont want to leave my children , im trying to stay positive but i keep going on the internet and reading all sorts and comparing it to me , i want next friday to be here then again i dont even want to know the results . i have got a bad feeling because i found the lump weeks ago i should of gone as sonn has i found it but didnt im kicking myself now . my 2 older children are being really strong also , i havent told my 17 yr old yet i cant bring myself too . i just feel in limbo at the minute , but i keep breaking down , how can i keep strong ??? 

Hi Bev. I know this is a scary time and the not knowing is really the worst. It’s difficult to do but I try not to let my mind race ahead to the worst case scenario. I suggest you look at the Macmillan, cancer uk or cancer research uk sites for info -I agree some of the other stuff can be terrifying on the internet. Try not to beat yourself up about not going to the doc earlier- I was told mine had probably been growing for 2 years so a few weeks won’t make much difference. I have a 19 and 17 year old and like you cannot even think about leaving them - but they have been a great support and yours might be stronger than you think. This site has been a great help to me so keep talking to us xxx