Terrible aching joints

And now these terrible aching joints do any of you get this problem in letrazol as with every thing that's going on feel.likening up  sorry for last my post 

And now these terrible aching joints do any of you get this problem in letrazol as with every thing that's going on feel like giving  up  sorry for long  post 

Hi  Simba4me

firstly, sorry for your loss.  As you read some of the posts, you will find there are many ladies having problems with joints.  I had my lumpectomy in 2017 and started on Letrozole.  For the first year I didn't have many side effects but into my 2nd year I started getting so many problems with joints, breathless etc.. My GP sent me for a lung X-ray which came clear...GP put it down to my age, dont they always! I saw my oncologist and changed me from letrozole to Anastrozole.  I have been on these for 6 weeks and quite honestly my aches and pains are worse, especially when I'm  in bed.  Once i get up, the pains seem to subside. I know its early days with the astrozole but I'll see how i get on.  Don't lose heart, you're definitely not alone as the friends on this site will tell you .  Chin up, the sun is shining.  

HI simba4me

Very sorry to hear of your loss.

I know a lot of ladies suffer with the oestrogen inhibitor tablets - tamoxifen, letrozole, anastrozole.  I am on anastrozole and one time I was given a different brand - within 2 days my joints were aching like crazy.  I had some of my Accord anastrozole left from the previous month so I switched back to them for a couple of days - no aches.  Then, to test again I went back to the other brand and the next day - aching joints.  

Although they say there are all the same the coatings of the tablets are different, so it's worth trying to ask for different brands and see how you do on them.  I just asked my doctor to put on my prescription slip (Accord Brand Only) and I always keep a month in stock just in case the pharmacy has trouble getting them for any period of time.

Kindest wishes,

 Hi Simba4me.      So sorry for your loss and for having such a bad time with Letrozol as so many ladies on here are suffering side effects from this drug, I have been on Letrozol for 2 years and no side effects in the first year but the last 12 months I wake up with aching joints but they do subside during the day, also very tired but I am 73 and at my age expect to get acheyat times you don’t say how old you are or what type you are on. I was on Teva at first they were ok then they changed them to Dr Reddys now I am on Manx Healthcare they are made in Warwick and seem to be better than the last two., hope you feel better soon.

Hi and thank you for your answers .I am on SUN PHARMA Letrozole 2.5mg as I said I was in tamoxifen but when I had my PE  was told to stop straight away so was put on Letrozole ...It's been. 8 months now and as I also have lymphedema my arm and wrist ache bad .some days I can hardly walk .The odd thing is before my.husband passed away I was loo!ing after him as he was a dialysis patient and never seemed to have aches . He died sudden so maybe shock I don't know as only 12 weeks ago .I am 72 he was 68 .I rung my bcn today as can't put up with not being able to walk .Hubby always drive me everywhere .I feel so down with these tablets and the lymphedema .They may have got rid of the cancer but it leaves its mark for a lifetime   Fran xxx

Hi. I am so sorry to hear that your husband has passed away and especially when you are going through this treatment. Can I just say I have been on Letrozole for a year and have always been on Sunmed Pharmaceuticals brand and like you have been really struggling with joint pain. It was so bad last week that I was going to phone the oncologist and ask to be put on a different medication. However when I collected my new prescription last week they gave me pills from Manx Healthcare and after 3 days I realised that my pain was significantly reduced and I did not need my walking stick anymore. I had only started using the stick because of the Letrozole.

It is now a week since the change and what a difference. I still get a bit of pain but that could be my arthritis (I am 73) but I feel so much better and am able to walk my dog in the local park.

Might be worth checking what you are on and asking your pharmacist to try another brand

Rosie x