These legs don't seem to be mine - anyone else had this?

FormerMember
FormerMember
  • 5 replies
  • 280 subscribers
  • 1906 views

Hi Everyone 

I am 18 weeks since completing chemo (3 EC and 2 Docetaxol); had mastectomy and full axillary clearance to right breast with immediate DIEP reconstruction on 16th January (10 + weeks ago); i started Letrozole 7 weeks ago; i have major healing issues to new boob and cannot start radiotherapy until I have healed.  I currently have a PICO dressing to hopefully aid healing.  I am 63 next week.

I am doing my best to keep active whilst not overdoing it.  Having a 30 minute slow walk each day.  Eating a reasonably healthy diet with plenty of protein.  Am also having cake - just to be sociable!

My problem is that my legs don't feel right.  They feel like they belong to someone else.  My left leg is the worst.  I have had a couple of falls and numerous stumbles and have started using a stick to help me.  It feels a but like I have had a stroke and lost some of the feeljng in my legs.  But I haven't had a stroke.

Have any of you ladies had this issue?  I am wondering is it: 

  • Nerve damage from DIEP
  • A side effect of Letrozole
  • Genersl fatigue
  • Peripheral neuropathy from chemo (although only come on since op) - but a delayed effect?
  • My body has just had enough ..

I am planning to see gp in the future but feel as though they will just dismiss the issue as present until I have healed and completed radiotherapy.  My gp seems very nice but I have never met him - only had a telephone conversation.  No oncology appointments.  

Anybody else experienced this?

  • Hi

    Definitely  phone your team as still early days, they will be better placed to help you , my GP admitted to having to read up on my chemo if I needed any answers  . I had peripheral neuropathy and this did effect my legs . This could vary from day to day , I had my last Dosetaxel last July/August  still have neuropathy in my toes and tips of fingers and still some days better than others but not keeping me back . 

    I agree with your walking but I find one day out then next day rest , worked better for me . Even now ! 

    Take care and wishing you well 

    love 

    Ruby Rose Rose 

    • My face looks better when I smile - so smile it is ! 
  • , sorry you are having this problem. It sounds to me like a mixture of fatigue, neuropathy and Letrozole, plus you really have had enough!!

    Agree with , it would be best to contact your team for advice, You are doing all the right things, but you need an explanation. You don't need the extra anxiety. Xxx

    Onwards and flatwards (don't do hills) and keep walking if you can!

  • FormerMember
    FormerMember in reply to seaspirit44

    Thank you and

    I had a dressings appointment today and the dressings nurse thinks my body is struggling with everything at moment. 

    We are going up to Melrose on Thursday for 3 nights to celebrate a friends 60th, and also my birthday which is the same day.  At hospital again on Monday.  My problem is I don't really have a cancer team at moment.   In a bit of a limbo due to healing issue.  So not sure where to go.  And being treated at 2 different hospitals.  Chemo was in York but York didn't do DIEP and nor do they do radiotherapy so I am currently at Castle Hill in East Yorkshire.  My breast care nurse is York I think.  So I may phone them after our break.

    Many thanks for your advice xx

  • Have a great time . BCN in York sounds the best bet as a starting point. Good luck xxx

    Onwards and flatwards (don't do hills) and keep walking if you can!

  • EI agree with all above...and have pmed you....but just to also say,it really is fairly early days....after I had had my DIEP I was very fainty and dizzy even just walking to the shops for some time.Sometimes have to accept that DIEP (and all your accoutrements)do tend to hit your little bod like a wrecking ball....hoping you can get to spaek to your bcn in York xxxx