Bone scan

Oh , how absolutely awful for you, no wonder you are worrying. Knowing that the Christie is a renowned centre of excellence, I think you can be reassured by what the trial nurse said. I understand completely though  the worry which will not go away. Big hugs, and keep posting xxx

Hi

I work in cancer clinical trials and would just like to reassure you that when you are invited to take part in a trial there are usually quite a few tests that need to be carried out in order to assess eligibility for taking part. Some of these tests will be over and above standard of care and specifically for the trial. As the trial nurse told you, they are effectively a tick box exercise to ensure that anyone taking part has the same or similar baseline and that there is nobody included that would skew the results of the trial. They are not an indication that there was anything missed by your oncologist. Please try not to worry and please make sure you talk to your trials nurse about your worries as she should be able to properly reassure you.

Take care

xx

Hi Horsing Around,

Thankyou so much for your reply.  I have just read it and it couldn't have come at a better time as my bone scan is tomorrow and I'm lay here worrying.  As an ICU Matron, I see patients being consented for trials frequently and have tried to rationalise it all, but your voice of reason has been so great to hear.  I can't thank you enough for putting my mind at rest and helping me to get a night's sleep. 

Gail xx

Hi pmess

can I please ask how the trial went? I can see you were grade 3 and in nodes (I assume as cleared them all) which is similar to my diagnoses- just looking for a bit of hope that grade 3 in nodes can work out ok? 

rhanks