Tamoxifen brands UK list? trying to find one that suits me!

I started Tamoxifen RelonChem on the 17th May and started my 15 sessions of rads on the 22nd ( also came off my Fluexotine for my Reynolds on the 17th) so was not sure if the tiredness, headaches were for what!

Headaches cleared up within 9days so that was the fluxotine probably, some fatigue so less hours at work, but one more rads to go yeh and then 5 yrs of Tamoxifen.

I do occasionally get a gout in my big toe but seems more than usual so not sure if this is the Tamoxifen or not but paracetamol sorts it, apart from that at the moment all seems ok, well apart from hot flushes but they are manageable and last only minutes

Hopefully no other problems will happen...

Hi, there

I've been on Tamoxifen about a year and have had several brands. Weirdly, the one that has caused me the most trouble is Teva and I will be actively trying to avoid it when I order my next prescription. With it, I have bad joint pain, particularly in my feet. Funny, isn't it?

Hiya

I’m just into my second month with Tamoxifen, I’ve got Relonchem. It seems OK so far except for feeling weary. Find it harder to get up in the morning though once I am up and about I feel normal. It hasn’t been a problem so far but I start back at work in a couple of weeks so that will be interesting!

 I take it in the morning. 

Hi 

Thought I would add to the Tamoxifen experiences.  I started tamoxifen last September and was first given Teva which I had read was a more favourable brand re side affects.   I then asked my Pharmacist to give me Teva each time which she has done with no issues.   Really,  I cannot complain too much as my side affects are not bad.  At first, I was very tired particularly in the mornings, had brain fog, a few hot flushes and dry mouth but most of that has eased off now.  I have joint pain which at times is quite bad particularly in hip and sometimes I take a painkiller for that.  I am planning to ask my GP if she can give me anything for joint pain as I like to do exercise and now I am finding that I am in a lot of pain afterwards.   The tiredness in the morning is a funny one, it is a sort of sluggish feeling that I never experienced before, I think initially I was also feeling a bit nauseous in the morning but I think that has passed too.  I think I was expecting things to be much worse, I had read about awful side affects so I think I can manage what is currently going on and hope that it continues like this. 

M xx

When I started taking the Tamoxifen I took at night, but forgot one evening so took at breakfast time, first day ok 2nd day so nauseous and weary in the afternoon I had to get my partner to collect me from work.

Went back to taking in the evening around 9pm when I have my last cup of tea and no nauseous feeling since, so evening taking it is- we have set up a system so my partner can check I have taken it when he makes his night drink somI don’t forget again

I also noticed some nausea and now take mine at night before bed, no more nausea! 

Well it seems my pharmacy can order specific brands except they got confused and when I went in today they had TEVA on the banned list DOH!! So they are reordering a pack for me to try. Interesting a few of you said this made you feel fatigued, the fatigue is crippling me on RelonChem so I really hope that’s not the case when I switch over, I’m like a zombie at the moment! They offered me Genesis today but I don’t know anything about that one?! 

Jackie 

Hi All

I’ve just picked my prescription up for Tamoxifen and I’ve got the Relonchem one....after reading these post I’ll be starting it tonight and keeping my fingers crossed. 

How soon do SE start?

Julie xx

Hi Julie

I noticed mine within the first few days and definitely within a week, but I react strongly and quickly to most drugs... chemo was such ‘fun’!!! Lol 

Fingers crossed you don’t notice anything at all :-)

Best wishes

Jackie

Hi Jackie

Thanks for replying 

Fortunately I dodged Chemo.  I start Radiotherapy in 3 weeks! I’m actually dreading starting these bloody tablets! My Daughter in law is a pharmacist and said “oh you’ll be fine on tamoxifen” errr have you been on them then??! Lol *smartass her* 

Well here goes the tablets start now! 

Thanks again Jackie

Julie xx

Morning

I am on day 20 - but who is counting... me

I have been working full time and doing vinyassa yoga throughout treatment (lumpectomy and radiotherapy - said no to chemo as oncotype score 21.  So active and upbeat... 

I am on Nolvadex and not great. At this stage preserving (but not silently so oncologist work and home know what is going on).  

If I take at night - I dont sleep and get hot flushes.

If I take in the morning I have nausea, diarrhea and a headache and get punched in the face with fatigue and loose concentration - all day...  Im still working and going to yoga in the hope that my body is on a journey and I do find it better (especially emotionally) if I keep moving then sit still.   

After doing a lot of research, My oncologist has agreed to let me split my tamoxifen tablet and try 10mg in morning and 10mg at night to see if I fare better (some woman have as not getting hit all at once and symptoms significantly reduced - or went away).  I started yesterday and I figure it may take a few days / weeks. There was research on reducing to 10 mg only but has not really progressed given so many priorities in cancer research.  

It is another option as it is important we can live versus the side-effects taking away who we are - So dont stay silent.

If I'm still rubbish we will try something different as my oncologist can see I am not myself.

All the best - it sucks.

Jill xx