It seems I'm a patient now!

  • 12241 replies
  • 340 subscribers
  • 2447191 views

But not a very patient one! 

I've at least got a diagnosis, it's invasive ductal cancer grade 2, but still small, oestrogen receptive but looks as if I might get away with the lymph nodes....and maybe not too much treatment afterwards? 

Complex plan, but to begin with, a sentinel node (plus another one or so) removal as day surgery, (a nuclear medicine visit first to get 'the jab' for them to trace) then a gap while that,  plus the HER result come back, then because of my previous surgeries for cysts and the fact one resulted in a massive haematoma, therefore scar tissue, I will have a complete mastectomy with an implant. That will be immediately after Easter. 

By finding out as much as possible beforehand, the surgeon hopes to prevent too many operations. Obviously I will then need Tamoxifen or similar, so will appreciate helpful advice about that. 

But I'd be interested on anyone's 'take' on her plan. I feel reassured that she took time with me, and the BC nurse afterwards spent a good while too. 

Hugs xxx

  • Moomy, sorry you sre feeling so crap.

    Agree with Leolady, you need to be seen before 4.15, especially if you have a fever. Steroids can mask an infection. Please call them. I don’t want to alarm you, just make sure you are OK.

    Hugs, Seaspirit xxxxxx

    Onwards and flatwards (don't do hills) and keep walking if you can!

  • Hi to you both, 

    My temp is fine, if anything a bit low, but then I am just totally lacking in sleep and rest! 

    Just hope this will improve, and very soon too, my ankles feel so stiff and sore. 

    A sofa day....again! 

    Hugs xxx

    Moomy

  • Take care Moomy xxx

    Onwards and flatwards (don't do hills) and keep walking if you can!

  • Thanks Seaspirit and everyone, for all the care and suggestions...you're all terrific!

    Had a hair appointment and a big hug from my lovely hairdresser, she's done my hair for a few years now and knows me well. It's lifted my spirits, especially walking about half a mile in the sunshine! 

    Now got my feet up and wondering quite what to have for lunch (that's another way I know I'm not brewing any nasty, my appetite is still ok!) 

    Hubs just remarked it's a good thing I'm not allergic to chocolate! 

    Hugs xxx

    Moomy

  • Just hope they won't take my blood pressure as I'm sure it's crazy right now! It is volatile always, all I have to do is look at the wretched thing and it goes up!!!! But I know it was pretty low post op. 

    Just managed a bit of needed cleaning, going to have to clean very well a day or so before I go in as I know I won't be allowed to do much afterwards for a bit! 

    Now feet up again.....

    So tired but not able to sleep yet. I suspect I'm probably a nut case right now, not coping at all and highly nervy about everything that's to come, stupid as I know I'm going to be in good hands, but that's the way I am. 

    Pouring my heart out on here is possibly as helpful as it gets, feeling very teary too right now. Scared? Yup! Terrified but I know it's got to come. 

    Hugs to you all xxx

    Moomy

  • Big hugs back !xxx

    Onwards and flatwards (don't do hills) and keep walking if you can!

  • Bless him, the nurse practitioner was lovely, I was called straight in as soon as I got there. He got an abbreviated version of the whole cancer history of daughter first then me. And then called in one of the GP's as he'd never seen this urticaria (hives) quite as severe before, heart rate and BP and temp all were raised, needless to say. And yes, I cried a bit.....

    They both agreed that although machine oil might have been a trigger, it's stress that has made it this bad. 

    So I'm now on an antibiotic, a powerful anti histamine which is prescription only, plus continuing steroids, an increased dose. They both agreed that I should go away on our holiday, just for a few days (hubs looked up weather forecast and I suspect we will have rain!) and wished they could prescribe a longer one on the NHS, when they knew what we've all been going through since 2004! 

    Hopefully this will now resolve speedily, and I hope I get sleep tonight! 

    Thanks to you all.....Seaspirit, your last remark set me off, bless you. 

    I realise I'm going to need a bit of emotional help and counselling getting through all that life has chucked at me the last 14 years, with daughter's illness first (and ongoing) and then this on top. Maybe a day crying for each year of this cancer c***p?! 

    Hugs to you all xxx

    Moomy

  • Moomy, thanks for updating us. So glad you are being looked after. Enjoy your holiday!!!!

    Hugs xxxxx

    Onwards and flatwards (don't do hills) and keep walking if you can!

  • It's 'just' Norfolk and self catering but a change of scene plus meals out will no doubt help! And it's just Monday to Friday next week, but the Doc was pretty insistent we should go! It's a break between SNB and the mastectomy. 

    Hugs xxx

    Moomy

  • Oh dear! An allergic reaction, in the early hours of course, most likely to the powerful antihistamine, phoned 111 who sent out a paramedic who bless him, checked me over very carefully and watched me too for well over an hour. 

    So, Duty Doctor at the GP surgery has talked to me this morning, has stopped some of my medication for a week because of possible interactions, and put me back onto 4 hourly Piriton and another night time antihistamine, (in the hopes I can get some sleep) and in case, an Epipen. After all this is over and mastectomy is ok, they think a referral to an allergy specialist is a good idea as I'm allergic to a few things now. 

    And just in case, as hubs has gone to pick stuff up, I will wait till he's back before taking the second dose of antibiotic! But the increased steroid dose has just been taken. 

    Ye gods! What am I like?!?!? (Shock-horror!) 

    Hugs xxx

    Moomy