It seems I'm a patient now!

moomy good you’ve got hubs a hospital bed and Carers coming in to relieve you so you don’t get over tired and able to spend quality time with hubs. Got everything crossed for good results from MRI you’re having Saturday. Xhugsx

Such good news that you’re sorted for the bed at least, your daughter looks like a lovely lady, brilliant she’s spending so much time with you both x

moomy, so glad you have had all that help and support, but still sounds like very hard work! Hope you find the careers a proper help and are able to relax a bit. Good luck with the scan xx

I plucked up courage to ask the hospice specialist nurse how long she thinks we have, she was so caring in the way she told me, about a month she says, but as he’s still having good times as well as being so tired it may not be accurate. She then gave me a big hug (not sure if that’s allowed yet) and comforted me. 

Carers are doing ok, the middle 2 visits aren’t that needed at present, there’s one that neither of us are keen on, but hey, you have to cope with what you get! And she does the job. 

Hugs xxx

It looks as if the care provisions are going to give you some time to spend together and to give you a chance to regain some strength.  I'm also pleased that mostly you are liking the people. That will also be helpful.

Is your scan this weekend? If so, fingers crossed it shows nothing .......or at least a manageable explanation for your back pain. 

The weekend weather looks pleasant. Can your husband still get outside or does he stay in bed now?

Take care. Love Karen

I think I will have to try and find a comfortable chair to sit in in his room, my back doesn’t seem to be any easier, but if it’s ‘just’ wear and tear then perhaps some physio might help. 

we are getting used to the one lady that neither of us are keen on, she was much more smiley this evening. 
yes, scan is tomorrow morning, daughter, partner and dog will be here, perhaps all staying with hubs while I drive myself to the hospital. We will see. I’ve had an MRI before so am not worried at all.

Sadly although it would be lovely to think we could get him out in the garden a last time, he’s now mostly in bed, can walk to the next room (bathroom) but I think soon he will have to cope with a commode which I know he will hate. 

Hugs xxx

Lots of love to you both Moomy xx

Good luck tomorrow for MRI.  For your back pain have you tried the Voltarol  cream.  I'm prescribed naproxen after diclofenac removed from prescribing list.  I don't find naproxen much good but I find putting cream on morning and night does.

I know it's hard watching your hubby fade away before your eyes, we are never prepared for this and you r been wearing your big girl knickers for so long the elastic must need replacing.  We found when my mother under the care of Macmillan nurses at home they had gently prepared us for each stage so when they happen you cope.  

I expect the carer may have just been nervous/anxious, new client and all that and........things will work out. Trust in the fairies to sort it. I can recommend some physio - even a little helps. They know which bits to concentrate on.

So glad that you now have support to help at home. My father had careees once his Parkinson’s meant that my mum wasn’t able to do everything and it was so helpful as it just stopped my mum from being so tired and also helped them both to cope a bit more. The ladies who visited were wonderful, professional and made my dads life a little easier, especially towards the end. They also helped by getting social services to get some additional equipment, we got a commode and also a wheel chair which allowed for my dad to get to the garden as he too loved to sit outside and see people. 
Fingers crossed for your MRI today, thinking of you x