It seems I'm a patient now!

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But not a very patient one! 

I've at least got a diagnosis, it's invasive ductal cancer grade 2, but still small, oestrogen receptive but looks as if I might get away with the lymph nodes....and maybe not too much treatment afterwards? 

Complex plan, but to begin with, a sentinel node (plus another one or so) removal as day surgery, (a nuclear medicine visit first to get 'the jab' for them to trace) then a gap while that,  plus the HER result come back, then because of my previous surgeries for cysts and the fact one resulted in a massive haematoma, therefore scar tissue, I will have a complete mastectomy with an implant. That will be immediately after Easter. 

By finding out as much as possible beforehand, the surgeon hopes to prevent too many operations. Obviously I will then need Tamoxifen or similar, so will appreciate helpful advice about that. 

But I'd be interested on anyone's 'take' on her plan. I feel reassured that she took time with me, and the BC nurse afterwards spent a good while too. 

Hugs xxx

  • Our system has just adding the night bag on the end of the leg bag. It’s worked well so far apart from one day when I think he stood on one and pulled them apart while in the bathroom! 

    Hugs xxx

    Moomy

  • I will need to phone Age UK about his single bed as apparently the supplier won’t even take it downstairs? There’s no room for both that and a hospital bed! 

    Hugs xxx

    Moomy

  • Poor chap is a bit sore, I guess as it was tricky he’s a bit bruised. 
    he’s enjoyed watching Bake Off though, and actually had a big fish finger and a few chips with some chocolates for afters! 

    Hugs xxx

    Moomy

  • Dearest , reading your post about the conveen and catheter brought back memories from my dads time with these.  The convene although a very good idea in principle there was always room for problems so to speak. Sadly, I learnt about these whilst my dear dad was in hospital.... trying to get a nurse to empty the bag was horrendous, to the point it ended up quicker and easier for me to do it.  I feel you will get on okay.

    The catheter should be better, before night time check there is no chance of a kink in the tube and that the bag is lower than the hubby, to allow for easy flow. (I'm sure this is right, however, don't take my word for it - check with your nurses).

    You are doing amazing.

    Have to say , Clare your post was lovely to read, you sound an amazing lady Hugging

    Right, it is nearly 2:00am - I am off to make a cup of tea, coax kitty to eat and then off to bed. 

    Sending love and hugs xxxxxx

    I'm hoping this makes sense - only my mind says one thing and my fingers type whatever they like x
  • FormerMember
    FormerMember in reply to WhatHappened

    Dear moomy

    You are coping with so much, caring so beautifully for your husband, you must be exhausted both physically and emotionally but you never complain.  You just carry on with good grace. I'm glad there is now some help available. 

    I hope that you and hubby will both find increasing peace in the next little while as you face what is to come and can enjoy precious little moments together even in the midst of everything going on.

    Thinking of you both

    Judith

  • Bless you, lovely ladies, your posts often bring this mist to my eyes, so helpful and so beneficial to weep a bit. 

    We had a reasonable night, son had watched the new series of Bake Off with me, hubs was watching too, there’s sadly not room in his bedroom for us all to watch together plus son mixes so although he wears a mask it’s not fair for hubs to have to, so we kept downstairs. I wear a mask while the kids are here too, with son due to his work and with daughter due to her vulnerable status. 

    After son left I got us both ready for bed, it still hurt hubs a little to sit to take tablets but it seems less sore this morning, and catheter is draining well. I suspect his prostate was causing as much trouble as the lack of sensation from the spinal stenosis. 

    Dishwasher is unloaded (bending to do lower basket a bit sore as my painkillers hadn’t quite kicked in) and washing machine busy (all those towels!) 

    Coffee was very welcome! Wednesdays is when I take the Alendronic Acid so pain relief and coffee have to wait half an hour!

    Today the Psychologist is coming, not sure if we have any other visits….

    Hugs xxx

    Moomy

  • Hospital bed coming tomorrow, (what a game getting it organised, means hubs has to sleep elsewhere tonight! Plus I will be on the mattress down on the floor downstairs I guess) and referral for care has been acknowledged, they just need to get an agency organised now, shouldn’t take long they said. 
    Son will help get old bed down tonight, and I will arrange for council to take it. 

    Hugs xxx

    Moomy

  • you are amazing! Sending hugs xx

    Onwards and flatwards (don't do hills) and keep walking if you can!

  • Care Agency is fixed, they might be able to start tomorrow morning!!!! Will discuss that when they get in contact. 

    It’s really all spiralling in at last, hopefully I can then revert to being more of a wife than a carer. 

    Psychology went ok though as yet I’m not allocated, but she spent a long time talking with me. Hubs has now come to terms with it all, she says, and was reassured that they would help me through. 

    Hugs xxx

    Moomy

  • Good afternoon Moomy

    I am so glad that at last your are going to get proper help for you and your hubby. I wish you both a loving and peaceful time, now that you will not be having to provide the bulk of the caring.

    Thinking of you 

    WallyDug