It seems I'm a patient now!

He’s just had a portion of chocolate Angel delight and some squash, said it feels strange just being in bed all day. But I said that it’s ok to do that, hopefully recharge his batteries a bit.. 

Hugs xxx

Was sorry to hear the latest news you and hubs received moomy but encouraged to see you are getting help and support. Hoping today in bed will give hubs strength for a good day tomorrow, hugest of hugs to you both and hope your back is not too sore today xx

Awh bless you both moomy.  Glad to see district nurse helping you both practically & emotionally xxx

She was just lovely and although pressed for time she never hurried me, so caring.

Ive rubbed his back and heels with talc and a slightly rough flannel as he finds lying on his side brings on kidney pain now, and I’m keen he doesn’t get any pressure problems. Will phone tomorrow to see if we can get an air mattress speedily, and perhaps a power raise for pillows so he doesn’t always have to swing legs out of bed to sit up to drink etc. 

Nurse also brought what they call ‘in case of kit’ of syringes and drugs for when he finds it hard to swallow. 

Hugs xxx

I’ve asked for a pressure relief mattress, hubs now finds kidney pain starts up if he’s in either side and then he needs Oxynorm. 
I asked what overall lengths hospital beds are but not even the supplier of home equipment seem to want to tell me! We have a square bedroom with some furniture that he doesn’t really want to get rid of. So length is a concern.

we had a peaceful night and (tmi coming!) he’s been to the loo this morning. 

Washing machine is now busy…..

Hugs xxx

Morning moomy, glad you had a peaceful night and good results this morning for hubs wellbeing! These things really matter. After a major op years ago, my OH found the constipation from the post op drugs worse than anything else. Glad he’s resting, too, I think at this stage he just has to follow his body and do what feels right. A heartbreaking time for you, good to hear that support services seem to be kicking in at last. Love and hugs, HFxxxx

Hi moomy…I had to go to GP with const.After a few different meds I personally find lactulose helps enormously.GP will know the reasons for it and be able to help with appropriate meds xx

Sending more hugs moomy and lots of love to all of you xxx

Many reasons for constipation, Violetsniff, not least of which is a very small diet with virtually no vegetables. Also codeine, though he mostly just has 30mg at night, plus Oxynorm which he has needed a daily dose of in the last few days. 

He wants to get up today but is feeling very tired, so I will leave him to take the lead. 

Daughter has come for a few hours, brought a few cupcakes which she made, he’s managed one small one plus an ensure juice drink so far, but doesn’t really want anything savoury. He’s had quite a few drinks of squash though so is trying to keep hydrated.

Hugs xxx

Hi Moomy,

You are in my thoughts and prayers.

I remember well my time with my dad at this stage. You are doing everything possible for hubby. It really is a case of him eating and drinking whatever he likes or feels like.you cant force it as it does tend to makes them feel or be sick.They aren't doing very much so they really don't feel hungry as such. It does hurt seeing them like this and not how they always were. You sadly do have to prepare yourself for the outcome you never wished to happen. I'm not being cruel and I'm certain you know its coming from my heart. its so important that you continue doing what you are being there to hold his hand so he knows he's not alone. Talking about your old memories together does bring comfort to you both. I do hope he is as comfortable as he can be. Sending you hugs and love to have the strength to face what is ahead of you both.

Love

Clare xxx