It seems I'm a patient now!

Hubs has heard the dreaded word colonoscopy mentioned by a nurse! Sensible if they get that done while he’s there, as it could be he’s losing blood that way. He says walking is loads easier after tre 2 units of blood though. 
Hugs xxx

So he’s to get more blood, and isn’t coming home today. Potassium levels just too high to have the scan contrast but he got a normal CT anyway. Hb was 5.9, now 6.8. 
he’s coping with the turn around in meal times - just, we’ve had our main meal in the evening for years. 

It’s sunny here today so I’ve pruned roses and blueberries and given each the correct feed too. Will mow the lawn this afternoon too. 

Hugs xxx

Poor chap has been sick (mealtimes are all wrong for him!) and so diabetes is screwy, had a hypo poor chap. Heck. Worry worry worry.....

I think a call to his specialist nurse tomorrow is in order to ask about a swift referral to Oxford’s renal unit. 
Hugs xxx

Oh dear moomy. you are both in my thoughts , sending you good vibes and some gentle hugs. I hope you are able to talk to his specialist nurse tomorrow and work out a plan xxxKwissy

He just got asked by a junior doctor who seemed to know why he was so sick, whether he knew results of today’s scan, he said he didn’t and what was it, junior doc went cagey and said he needed someone else to come and talk to him. It’s not looking good, I suspect there’s a lot of spread since the last scan, and guess we are maybe into terminal care. It’s sooooooo hard not being able to be there with and for him. 
gutted

Hugs xxx

A call to specialist nurse and referral may put your mind at rest moomy

Take care 

So hard for you moomy, it’s heartbreaking not to be there supporting him. Definitely some phone calls tomorrow, you need more information, not to mention some support for you. Love and hugs, Xxxxx

I was allowed to visit, gold dispensation they call it! Spent about an hour and a half, fortunately when several doctors cane to discuss treatment. 
mum tired, can cry for England but some of the desperate anxiety has been eased as a result. 
More explanation on the ‘Awake’ thread. 
hugs xxx

So the plan.

gastro team will try and endoscope to see exactly what state his stomach and duodenal end is in, the scan doesn’t show that in enough detail. Then they will plan to operate, either to fit a stent to allow food and drink to go through or to make a bypass, again to allow feeding. He will be in intensive care after that for a day or so but they hope then to get him home and it’s over to the Renal team to deal with that major problem.

We have agreed to a DNR as they said resuscitation would be difficult and would most likely kill him. We’ve also agreed to a palliative referral which of course doesn’t mean they won’t treat him as they are indicating. 

I hope they can biopsy enough (not necessarily of kidney but the spread will give enough information I think) to advise the renal team and get any possible treatment in place speedily, they seem very busy and intent on going through MDT weekly rather than with the urgency I’d have hoped for. 

there is a worry that he won’t survive if the op starts up major bleeding of course, it’s looking like some bleeding in the N-G tube fluid which, though uncomfortable, is helping lots as the vomiting has stopped. 

I now have to try and cope and worry about the stuff my hoarding husband has acquired over the years! It will mean quite a bit of work sorting it all out (I’m a bit of a hoarder too but nowhere near as bad!) 

Hugs xxx

N-G tube fell out but has successfully been reinserted. Endoscopy sometime today.

I’ve got a lovely neighbour who I’ve told, he immediately asked ‘are you eating?’ He’s a chef!!! 

Hugs xxx