It seems I'm a patient now!

  • 12235 replies
  • 340 subscribers
  • 2446705 views

But not a very patient one! 

I've at least got a diagnosis, it's invasive ductal cancer grade 2, but still small, oestrogen receptive but looks as if I might get away with the lymph nodes....and maybe not too much treatment afterwards? 

Complex plan, but to begin with, a sentinel node (plus another one or so) removal as day surgery, (a nuclear medicine visit first to get 'the jab' for them to trace) then a gap while that,  plus the HER result come back, then because of my previous surgeries for cysts and the fact one resulted in a massive haematoma, therefore scar tissue, I will have a complete mastectomy with an implant. That will be immediately after Easter. 

By finding out as much as possible beforehand, the surgeon hopes to prevent too many operations. Obviously I will then need Tamoxifen or similar, so will appreciate helpful advice about that. 

But I'd be interested on anyone's 'take' on her plan. I feel reassured that she took time with me, and the BC nurse afterwards spent a good while too. 

Hugs xxx

  • A beautiful morning, washing almost ready to get put out. Just hope this is a foretaste of the weather for next weekend as we are all (the whole family) off to Acton Scot in Shropshire, in our various vans and tents.....So looking forward to it! 

    Hugs xxx

    Moomy

  • A good walk today, almost 4 miles,  hubs wheeled, round a small lake (many of the lakes are used as balancing lakes against floods) and spotted this delivery ‘pod’ called a Starship, on our way home! I’ve been seeing them for years around Milton Keynes but they are now branching out and covering outlying areas! Stupid site has loaded it on its side! 

    Hugs xxx

    Moomy

  • Today was a museum day, the Bombe had thrown up a problem last week but we were unable to replicate it! Perhaps due to that heat? Who knows? 
    Hugs xxx

    Moomy

  • But another (probably the last one) of our volunteer demonstrators came for his inspection of the new stockade and to get his H&S directions. It might be a touch difficult for him as he has lost his co-worker and is left to potentially struggle with colour blindness! (And the Bombe drums we use are a fairly close colour to each other!) He’s a clever chap so will get by. He also picked up a face shield which (in addition to the Perspex panels around the Bombe) we all now have, courtesy of one of the engineers who has a 3-D printer

    We did quite a bit of talking about old documents which were brought in, and they are now safely tucked away in a locked storage cupboard. That was from one of the Trustees who sadly died just after we moved, and was the trust secretary but also a tremendous researcher. We all do miss him, he was so clever but could explain complex stuff in a way any of us could understand. And that was cancer too, a rare endocrine cancer. Curse it! 

    Hugs xxx

    Moomy

  • It’s wild wet and windy out there. Take care all!

    Yes I do want to mow the lawn and get some washing done but will wait!

    Hugs xxx

    Moomy

  • Grrrrr, I think I’m at an awkward age; whenever I try to do something involving a movement like onto my knees to reach something I go and get cramp!!!! I blame Letrozole! 

    Hugs xxx

    Moomy

  • Hi ,

    I struggle to get down on my knees now but can't blame it on the Letrozole (though don't think it helps)  as I couldn't before I started it !. Arthritis in my case - and I can't take any of the anti inflammatory drugs due to severe allergy. So take Glucosamine and Cod liver oil to help and have done for many years.These things are sent to try us  !!

  • I was ok before Letrozole, even in mid 70s, so I honestly think it’s that. And no I can’t take anti inflammatory drugs either as they make me wheeze.

    its a b***er isn’t it?

    Hugs xxx

    Moomy

  • Yes . you couldn't have put it better!!  It does sound as if you can lay it at the Letrozole door  then .All we can do is soldier on and that is so much better than the alternative ! Hugs xxx