The operation

Good morning all,

Pleased to report that I was able to chemo number 2 yesterday. Don’t feel as bad as last time but still not great. The ct was, errrrrr, interesting!! Should get results in 2 weeks at next appointment. 

Jammy R, we swerved the clarinet. Our eldest had lessons but didn’t practce. I warned her for 2 terms if she didn’t practice, it would go back. It went back!! She did learn the recorder though!! 

No snow here but it did rain overnight.

Leolady, glad to see you’re doing much better, well done!! When do you see consultant again?? 

xXx

Good morning ladies. 

Well it would be impossible to reply to all of the posts, just to say I’ve been reading them all but wasn’t up to commenting. Just been a bit down and thought it best to keep myself to myself for a bit. 

Anyway Jolly I hope you’re appointment goes well today and Jammy I will be thinking of you as always for Friday too. LL you sound like you’re back on little galloping form. Chuckled at the Card Factory experience. Ali I hope you start to feel better soon. Bigguy hope all is ok with you too. 

Hello to the new ladies I’ve seen on here too. 

Went to the chemo unit on Monday for the afternoon, watched a film for 40 minutes, my DIL had to nudge me as I was nodding, so hot in there. Was a bit grim if I’m honest probably because I didn’t actually want to be there. 

Three attempts to get blood from me, doesn’t bode well for the IV, lovely lady but when I saw ‘trainee’ on her badge I just thought ‘only me’, took it out of the side of my hand in the end. 

Tuesday was my nuclear scan, he on the other hand got the needle in and I actually didn’t realise he’d done it. Think I found out that I have a bit of claustrophobia, suppose having my arms fastened to my side and a screen an inch from my face for a considerable time had something to do with it lol. Anyway he said this looks at every single bone in my body so I’m happy with that, results next Thursday. 

Chemo day tomorrow, I’m having EC, I already know that my trust have dropped the F bit of chemo as have some others but the nurse seemed surprised I wasn’t having the T bit afterwards.

As you ladies know the slightest thing that doesn’t sound right gives you that panic feeling. I’ve asked her to check with the onco why I’m not having it. 

Don’t get me wrong, the less I have the better in my book as it’s all over with sooner, however if I’m putting myself through this bit and leaving a bit out doesn’t actually keep those stats for recurrence down then why am I doing it in the first place. 

I was a need to know everything person before this so anything that I think they aren’t telling me plays on my mind. Saying ‘oh maybe when you’re near the end of this, the onco will say you’ve got to have this bit now’ isn’t good enough for me. 

Well I’m in cleaning mode today so that there’s nothing left to do after tomorrow’s appointment and I can chill out over the weekend.

I really hope that sleep fairy comes my way tonight, as I’m desperate, last week or so she has avoided me completely. 

Hope I haven’t missed anyone’s appointments today. 

Xxxxxxx

Bigguy 

Is Chemo number 2 like Mambo number 5. Coz if it is I’ve got this weird image in my head of a sort of conga line. Predict thought Congo a better option. Oh tee hee . But joking aside pleased you got through it. If this little funpacked meds gets me I hope I’ll be as amazing and positive as you.

Jacks maybe you should borrow the video you nodded off to. I nodded off to Escape to the Country yesterday . Still don’t know which house they bought . Oh woe is me . 7 attempts for cannula. I look like I’ve done 10 rounds with a heavyweight. Sore on wrist and back of hand. 

From all I’ve read seems like the F has been dropped. Well it’s good to drop an F every now and then!!!

Must away to find what fits out for lunch

See you all very soon

Leolady 

I’ve been playing see pic! Plus a sig. mmmm wonder if it worked????

Hello lovely ladies,

Deb and Bigguy glad you both got through chemo yesterday and not feeling too bad. I imagine it all feels a bit surreal still but each day is a day nearer end of chemo now. Deb well done on getting through cold cap, doesn't sound fun but def worth a shot I think. Did it add a lot of time to your appointment?

Ali - sorry you arent feeling yourself. You are not far from half way through chemo now so maybe just cumulative effects of medication/stress but just make sure chemo team are aware if needs be in case its anything that needs checking over. 

Jackie- been thinking of you a lot, as you know. I guess  it really is just a case of taking it a day at a time at the moment. As the undisputed queen of overthinkimg I am not one to talk really but try not to worry about what drugs you are getting. By all means adk the onco as you need to understand why the particular route has been chosen for you but from what Ive seen on here some people seem to get the T but bit not all. I completely understand why you dont want to post when you are down and I feel the same but if it ever helps to write it all down you can always vent on here or via PM. We will suppport you always.

Jolly - hope scan passes without incident (i.e you keep all the water in!) and snow not too bad. A lot of the older kids at Libbys school are doing young voices at Sheffield Arena tonight and there was talk of it being cancelled but think its going ahead now which is a relief for the children. Lib can do it next year she is already asking if we will let her!

Leo - have a lovely lunch and a nice gallopy sort of a day. You are doing v well given less than a week since op. Any news from hospital on naming the theatre after you yet? Make sure you give us plenty of notice to get our new frocks bought for the plaque unveiling ceremony! 

Hi to everyone else, hope you are all warm and well.

So I woke up feeling anxious amd wasnt so sure I could manage the finiding positives thing today but dug deep and got up (not that had much choice with school run to do!) and have had decent morning. Cleaned house (with my good hand) which I only mention as it is a rare occurence these days! And a friend popped in for couple if hours. So now not long till repeat school run then acro lesson this eve so might take Lib for tea in town before  it. We had a lovely chat last night about my operations as she knows I have hosp appt this week. For the first time I drip fed her a little bit of info re chemo....didnt call it that just said Drs might need to give me medicine to get rid of last tiny bit of lump if they think it needs it . She must know some stuff from general knowledge and being quite savvy for her years as she said oh yes will that ne medicine that can make you feel poorly. So i played it down a little and said yes if i do have it, it takes few months  and could feel bit off colour sometimes but absolutely nothing to worry about. She was fine didnt seem worried. I feel better that she has a little heads up but dont plan to tell her much more than that...if I do have it and aren't too bad with it she need never know much more really. 

Take care everyone and Jackie will be thinking of you tomorrow and sending good vein vibes your way bet the non trainee chemo nurses are good at getting veins... least you would hope so as they do it day in day out.

xx

Wow after a quiet day yesterday. it's busy again. Good to hear how everyone is doing re appoints etc.

Snow was interesting this morning for the commute in, I ended up having to go in via town, on the hospital side. Well lets just say this side of town the roads were appalling the other side and out into the villages the roads were fairly clear and gritted, bonus of that was I then knew I'd be ok getting to hospital later on.

Got to hosp early, sat down in waiting rm, starting drinking water as requested, Meant to be half hr from appoint time before scan to drink that crazy litre. Well only just managed 3 cups before they called me in, after only being there approx 15 mins or so. Not very long anyway. Scan was done, only had to whip off my bra as I went prepared with non metallic clothing. Contrast dye was ok, felt it at back of throat but no weird taste, and then was warned may feel like having a hot flush, escaped that one, shame it doesn't always happen in RL though. Then the warm spreading feeling between and down your legs, bizarre not quite like wetting yourself, but not far off it either. Scans took no time at all. Had to wait 10 mins after to check no side effects and get cannula out

However I did have one dilemma......nice male RT person said I could keep my own clothes on as long as took bra off. I did, put my jumper back on, rolled up sleeve for him to put in cannula.

Now was a problem after scan getting dressed. Couldn't take jumper off as had tight sleeves and cannula in arm now in way....how am I going to get bra ,and vest top back on so I can go and sit in waiting rm to have cannula out, can't put coat on, all love in the world, not sitting there in a fitted jumper with one boob in a room full of strangers.

Managed to take one arm and head out of jumper, feed straps on arm, pull jumper through and then fasten/pull vest top back over head, followed by jumper. It was definitely a close call. Was expecting guy to ask if I was ok, length of time it was taking me to do my clothing gymnastics in the cubicle.

I survived, now the dreaded wait for the lovely letters of NHS doom to land on mat with what's what next. Then it'll be the RT letters of doom to wait for too.

I love using status shuffle, this has to be one of my favourite at the moment

'Nothing says Ahhhh! and Freeeedom! Like taking your bra off after a long day!'

Right Jolly we will add clothing gymnastics to the NHS bingo. I never know what to wear for the various appts but usually end up in a tangle whatever I choose! Glad it was relatively ok though and you retained some modesty!

Today's glamorous job for me was shaving under arm...this is tricky as a)cant feel under my arm so its a bit like shooting in the dark b)can't use disposable razor there anymore due to risks of cuts/infection in the lymphless area. Can I be bothered to buy a ladyshave or cream...nah, solution ...use disposable as usual for good arm and legs, borrow DH electric razor for other arm. Can't imagine he will be overjoyed at  sharing his toy but what he doesn't know...

Evening everyone, wow it' been busy on here today so forgive me if I miss anyone but having read through all the posts I am thinking about you all!

Jammy - will be thinking of you for Friday hoping you dont' have to follow my chemo path but if you do then it really isn't as bad as I was expecting although I'm only day 2 in, so far so good though! The cold cap went on half an hour before then the chemo took an hour and half then the cap renained on for a further hour and half so 3.5 hours in total! As for the numb armpit I've been doing mine very carefully and lightly with a fresh disposable each time naughty I know but it's ok and thankfully no nicks!

Leo lady- i nearly did throw the cold cap early on and if I have major head shedding before the next one I wont' bother with it! Sounds like you've had a lovely lunch out!

Bigguy- glad chemo 2 went ok and they did struggle with my veins I think the veins go into hiding not wanting thst horrible stuff in there, heat pads and eventually they got one!

Jolly g - glad the scan went ok, I complained of backache which I keep getting and so they said I can have a bone scan at the end of chemo if it persists even though the ct scan was clear but I'm a stress head so every niggle and I highlight it much to their annoyance I'm sure! X

Woo hoo

limited galloping frowned upon in the shires restaurants . Have galloped as you know in Marlow also lost knickers. 

And tonight my iphone is on wazak setting. Tiny font and daft predict 

So enjoy the gobbledygook 

Jammy/ Jolly can we dol Longest post for Bingo. You 2 are in serious contention. Plus the clothes dance. Young Voicesn got to O2 one year stunning. Err I’ve bought a new frock for the opening ceremony of my theatre ward chair plaster err when can I wear it?!!!. Libby is so so savvy. Must be dad’s genes  eek another offence remark . I’m blaming the anaesthesia 

Jacks keep posting with us

Jolly no flipping snow. Not fair im putting in a complaint to the hot flush fairy. I am happy to share my every hour. Boob alerts should be part of our appts. We need to think of an appropriate song to be played . Got my letter today. 2 pages to say when my next appt was. Same old computer generated ????????????? So why I’d I go all silly and jelly legged

Deb right another Bingo call then or top trumps for how many scans we can st???? The NHS for. So I’ve got 2 scans and I’ll raise you ....,,,,

Right

This has been a Leolady production no animals or children were harmed in the making  the blooming squirrel 

take care

Leolady

What just read back this total poo

my iPhone has decided to take over my posts. Predict text

hope you all are well

see you in the morning when the sunbeams shine

Leolady looking for her plot ( predict did herb plot!!!!!)