So in  5 days time I have the operation to remove the tumour - randomly known as Ian.
Jacks77 - I' m feeling the same and as I'm typing this im blubbing too, it's such a rough ride and at the moment it feels like there's no end to it! Nausea is awful this time and I've noticed I've only a couple of tablets left and 20miles away from the hospital so gp will have to have a call I think!
We will get through it somehow because we have each other, so stuff bc we can do it and we will, big hugs to you Xxx Deb xxxx
Just throwing in my hugs too for Jackie and Deb.... as Leo says no need for apologies when those very very low moments hit you we are here. We can only offer virtual love and hugs but we are all thinking of you and wishing the SE away for you. You are both amazing, strong and very special people. xxxx
Thank you Jackie, sorry I was feeling sorry for myself that day, but much buoyed up by support from the lovely group online here. Â I'm hugely grateful to the wonderful people at the hospital, who rescheduled me very quickly after their own snow days - I had the op yesterday and got home at 10pm. Â Without exception, everyone I interacted with yesterday was just fantastic. Â Hubby is bringing me frequent cups of tea and I'm going to take it very easy today. Â I wish all of you as good a day as is possible in the circumstances in which we find ourselves - and thank you for your support. Â J
Janeydoll - thinking of you too my lovely chemo twin. I had less steroids this cycle as onco said with the super duper anti sickness tablet I have an hr before chemo dont need as many so was only prescribed 1 a day for first 3 days. Have felt a bit less flushed and much lesd spaced out than last cycle so dont know if that is why. My problem is lack of energy and sleeping all night... can get to sleep for first 3 or 4 hours of night then awake after that which makee me feel groggy all day. But compared to others I am moaning about minor stuff really, escaped nausea really with the exception of tummy feeling bit odd first 24 hours.
Hope you feel ok later once steroid crash wears off. Take care x
moomy, Leolady56, JammyR, Deb09, , ,
Thank you ladies, just beautiful all of you.
Yes sobbing uncontrollably at the lovely encouraging comments but maybe that’s just what I needed to do, it’s a release.
I dont have the words at the moment to explain how much you all mean to me, we are all there for each other, I’m sure it will be me back soon rallying the troops for someone else feeling a bit below par soon.
Thank you again and love to you all xxxxxxx
Dear all you fabulous ladies,
you are amazing and strong and crying does not make you less so All my heart full sympathies for the horrible SEs you are all going through and sending you lots of gentle hugs and best wishes to see you through the next while.
i was sent this a couple of weeks ago, hope it helps even if only a little.
I met a wonderful lady today on her last stage of her journey at radiotherapy. She had sure gone through the ringer since April last year. We sat chatting about her plans to head off to the US to see her son once her treatment finished.
Take care all xxx
There simply has to be an outlet for the emotion and sheer physical hell that CT brings and that outlet is tears. Let them flow but don't suffer on your own. If you are really struggling today pick up the phone to a friend, macmillain, BCN or get your hubby home. I def need a few hours on my own to wallow and cry without upsetting others from time to time but do reach out if you need somebody.
xx
Hi JammyRÂ
Well done getting through your second chemo ordeal hope your resting up now. Soon you will be back to that good week and that leads to your next one. Slowly ticking them off :))))
I know how you feel about your hair, mine is looking bad and I can't leave the house without a hat. But no one can tell as I still have a fringe and hair long enough to see at the sides . I had thought my cold cap days we're finished but having thought about it I am using it again tomorrow for my third FEC. I look at it this way hats are easier to handle than a wig. I have my wig on standby !
I have got away with mild SE effects up to now just tired and that horrible cardboard mouth.
We should all be so proud of what we are coping with and getting through. I have found reading and talking to people on here so helpful .
Hugs
Jan x
JammyR,
Hope you’re adjusting to your, ahem, hair siuation. I know I’ve said before but it really was the worst part of this wretched cancer roller coaster. However, it made me more determined to fight as the only way out when cancer puts you at the bottom is up!!
My son’s 15 with ASD and found losing my hair very difficult. He saw my baldie head by mistake one evening and he was fine with it. He still isn’t keen but he copes well. It always takes him a while to come round to my new hairstyles/colours so this is a really big deal. Libby will come round to in her own time, but she’ll have to be ready. She sounds like she knows her own mind though and will want to see due to FOMO (fear of missing out - lol!!)
T truck more like a Mini Cooper at the mo but it is only day 2 so early days. Have a bit of a sore mouth, mild backache & heavy legs BUT no nausea!!! Result!!! Didn’t sleep well as wired from steroids but they’ve finished now so hoping the sleep fairy visits tonight.
Keep your chin up chicken, hope your disastrous chemo day is well & truly behind you. The PICC line will transform chemo days. I was told I’d have mine in time for cycle #4 but it was actually done for cycle 3. Hubster & I go to hospital on Saturday lunch time for dressing changes and go for a long brisk walk immediately before on bloods days as there is very limited research that neutraphils increase during and straight after exercise!! Me & my big mouth...should not have told him!!
Take care xx
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