AWAKE.........

Oh Taralou, 

Steroids stink for causing sleepless nights! My first experience of that was in A&E after anaphylaxis reaction to an antibiotic! 

Hope you catch up with some lovely long sleeps once they wear off. Can you just take them in the morning? 

Hugs xxx

Hi taralou, good luck with the taxel side of treatment today. We will be thinking of you at 12!

My appt with the surgeon is really just a confirmation that all was good with the US. I feel it is a waste of their time, but the BCN says he wants to see me, so there I must go! 

My rads finished 10 days ago (last Tuesday) and I felt great, but my skin is starting to get very sore by the breast bone! It is quite red and hot. I have been putting on the R2 cream a few times a day still, as recommended, but have now resorted to Germolene to anaesthetise it. I know the effects continue for up to 14 days, so I’m not worried, but it is so uncomfortable! It doesn’t help that I have to keep going back to wearing the breast strap, as my temp implant keeps trying to ride up! I can’t have a boob up by my clavicle for the ball; that would completely ruin the line of my new gown! Lol, xxx 

Sorry that some of you didn’t sleep well last night. Even though I slept earlier, I still slept through, lol! I have always been able to fall to sleep anywhere, at any time and I am obviously back there now that my treatment has finished, yay! Xxx

Sorry you can't sleep Gbear, but love your bear pics. I woke very early after getting to sleep late. Sleep,pattern gone awry.

Hugs xxx

Snowys Mum Happy Birhtday :-) 

have a great day xxx

wombat.23 a smile for you :-) xx

JoDec - It's hard planning for things when you're still in discomfort and need to wear specific things! Hope you manage to get things sorted  - bet you'll look fab in your dress! 

I went to a  charity Ball for my favourite ballet company 10 days after my Mx (no reconstruction) and 5 days after I came out of hospital. What's more it was 200 miles away - luckily I wasn't driving and it was a Right Mx so not too much seat belt rubbing!

I was really sore but managed to wear a soft bra with a knitted boob over the scar -  not sure I really enjoyed the evening as much as I could have as I was still really weak (after a massive bleed the night after the op, hence the 5 day stay in hospital) but everyone was lovely to me and the ballet dancers that I danced with during the Ball were all really gentle and caring! 

It's good to book stuff in to look forward to during the journey - I was determined not to miss anything that I'd booked - the Ball had been booked well before I was diagnosed! 

Hope the appointment went well today

Well ladies that is #5 of 7 completed, only 2 more to go -- Hooray!!!

Panicked all night about it which obviously worked well with the steroids to keep me awake. T treatment all went well and have been advised what to look out for and ANYTHING at all unusual to call the oncology unit.

I really can’t complain about my onco nurses, they are just the loveliest people to treat you, so sympathetic, always ask how you are they remember your name etc etc and we get free tea, coffee and biscuits coming around every 2 hours (plus free parking which I know some of you don’t get).

Will keep you updated on my SE when they eventually kick in, feeling fine at the moment.

Lovely having DH home today. He always comes to chemo and onco appointments with me as he knows I will never remember everything being said to me!!! (either chemo or old age brain, probably both!!). So, he has been shopping and is now cooking dinner tonight - heaven!!!

wombat.23   Yes have plenty of painkillers however, when talking to onco nurse she said not to take too many on a regular basis as could mask any high temperature. We all get told different things at the hospital’s we attend never seems to be uniform across the board.

Thanks for your message and hope everything is good with you at the moment.

Hi moomy   Yes I know they are but didn’t expect not to sleep at all!!! No, have to have at least 6 hours apart so I try to take the 2^nd dose sometime between 2 and 3pm however, did that yesterday and made no difference!! Have taken them all for today and I also take amitriptyline for pain and they are great for getting to sleep (not last night though ) so am going to up the dose tonight and hopefully sleep all through. Somehow don’t think I will though as haven’t done previously and these steroids are stronger.

Ahh JoDec,  thanks for your message. I know sleep will come eventually just another cross to bear with this BC!!   Brilliant news about finishing your treatment. Just make sure you get your boob checked out if it carries on, don’t leave it too long. I love germolene and also Ibroprofen, my 2 go to things I turn to every time. Love the smell of the germolene as well, ha ha, little things that please me!! Glad you got some decent shut eye as well.

Take care everyone and hope to stay in touch for a few days however, if you don’t hear from me you know why!!!

Keep strong and stay positive

Hugs and kisses to EVERYONE on this community

taralou....totally recognise that sleep pattern of the night you didnt get any sleep....bless you xx  Love the smell of germolene..our Dad used to use it on our sores...much better than iodine from his Army Officer days!!!!

....Massive Hugs...you are a lady in a million!!xxxxxx

....so well done xxxx

Hi everyone very quiet here hope everyone ok xxx. Had call from doctors to book me a telephone appointment for Monday think it's due to rising cholesterol which I'm putting down to Anastrozole As I had a smear yesterday sent me into bit of a panic but think it's too soon to be about that and I was told they'd speak to me for cholesterol. Hope anyone with appointments or results is doing ok. We should all make most of weather tomorrow but I'm at hospital with appointment for my daughter. Ugh!! X

I have just been telling others I feel very overwhelmed at the moment, totally and utterly heartbroken to hear my friends devastating news. His prognosis is now 12 weeks yet not so long ago he was going great. Ok I realised I was aware last year when he was diagnosed that it was incurable but there has to be hope, maybe the new round of chemo will help, lap of the gods i suppose.

So I just keep on trying to be the positive influence. Here I can admit my true feelings. :(