AWAKE.........

Hi Lacomtekp , the treatment I shall be on, will be continual until it either stops working or causes too many issues/side effects! 

It’s an injection of Fulvestrant given into the muscle of your bottom!! Every 28days, although the second injection is given after 14days! So 3 injections in the first 28day period. Just to get established I believe!!

Then it is a drug called Ribociclib which is a tablet taken every day for 3 weeks, then a rest for a week before starting again, subject to bloods being okay! 

Bloods have to be done each time to check all is good. So that’s done I believe at the end of week 3 ready for the start of the cycle again?! I’ll find out the exact pattern tomorrow when I see the nurse! 

It’s classed as targeted treatment. So no where near as rough as Chemo. Although can have some of the same side effects, including affecting the immune system. So I will carry a card to say if I end up in A&E at any point (hopefully not) they should start IV antibiotics within the hour! Sounds like a good set up, but hope I never have to test it out! 

Hope that makes some sort of sense! I know to some that’ll sound really simple compared to Chemo and will be wondering why it bothers me so much! Well it’s the fear of the unknown and the knowledge that this routine, alongside my Zoladex injections will be part of my life for the foreseeable future….. hospitals, hospitals and yet more hospitals! 

But yes I am VERY grateful that this treatment is available! Because without it, Chemo would probably of been my only option left! 

Hope you are doing okay Hun! How’s the weather in France? It’s been very humid here the last couple of days! Not very nice at all. 
Sending you a ((((BIG HUG)))) and much love to you mum xxxx

Hi all, popping in to distribute some hugs…to LondonLass for tomorrow and ongoing, sorry you’re back on the rollercoaster though I know you were never quite off it, it’s pants having to face more treatments and more appointments. Keep going dear Sal, as many have said we’re all with you. Also to seaspirit44 , wishing your son better treatment and a good recovery, so horribly stressful and worrying for you all. And to all fruit loops past and present. Xxxxx

And hooray for this thread, helping countless of us navigate and deal with the sh** that is cancer!! Well done LondonLass on reaching such a huge number of posts, we all get by with more than a little help from our dear friends here xxx

Thank you so much again for this wonderful thread LondonLass xx

Thank you once again everyone for your support. Just waiting on phone calls and texts now xx

Oh dear seaspirit44 that sounds appalling! So glad your daughter in law is on the case, the whole situation sounds so poor, official complaints are definitely needed. 

I can understand how badly you feel about it all too.

sending much love and more of these

hugs xxx

Best of luck tomorrow LondonLass.  Will be thinking of you.

Daisy53

I think there will be a very crowded room in with you LondonLass as we are all rooting for you and hoping all goes well with no side effects! (Or at least none to worry you at all) 

hugs xxx

 LondonLass  gosh that treatment room had better be big, with all of us fruit loops in there....but at least we can try to do some damage control as far as LP is concerned!

Seriously, try to get some sleep tonight,easy said I know.

Much love

Sally

Night night Fruit Loops, sleep well and stay safe (especially you, dear Sal/LondonLass ), plenty of sleepy fairy dust for all who wish

hugs xxx