AWAKE.........

That made me grin, ! How true!!!!

Hugs xxx

Good night. Sleep well.

Peaceful night for everyone I hope xx

Oh I so need to switch off and go to bed , been sorting and cataloging photos on iPad . Transferring onto laptop into yearly folders  then importing to one drive .  Will take me weeks I think but at least they’ll all be in one place and organised .

Then tonight have been setting up new iPad manually as old one too old to transfer lol

Wow that sounds a task and a half Northerner but will be so satisfied when done, wish I had the wherewithal to do the same. But yes time to shut down the technology for the day, sweet dreams xx

Good night everyone . Sweet dreams . I slept well last night ( now on amitriptyline ) for nerve pain . Let’s see what tonight brings .

Hugs

Penelope x

Night night Fruit Loops, sleep well and stay safe

lots of sleepy fairy dust available for all who wish

hugs cxx

Oh dear ! Spoke too soon and tonight I am having a sleepless one . Getting worried over my nerve situations . Speaking to my oncologist on Monday and it now may be a week of steroids before starting radio therapy . Any ideas on where to go for people who experience severe nerve pain ?

xxxx

Good morning PenelopeJ57

Is the nerve pain in your feet and hands? Leg? Unfortunately Taxotere is renowned for this. Discuss it with your oncologist.  It often takes six months to improve and there are painkillers......trial and error I'm afraid.....eventually we found that I take up to 500g of gabapentine a day ......but if things don't improve unfortunately you will need to see a neurologist. B vitamins can also help if you are deficient. I was deficient in B1,6, and 12 which are all linked to nerves.

I had an operation for the problems chemo caused on the sciatic nerve but my feet and hands have nerves which were permanently destroyed. Mine was a severe reaction and my own fault as I don't live near the hospital so didn't contact them when the problem first started during the change to taxotere. I just thought this was normal and I didn't want to make a fuss. It wasn't and the next time the reaction was so bad that my last chemo was cancelled. I still have skin which peels away from time to time and my fingers flare up so sometimes stiff and move less than other times. My feet are always both burning and freezing at the same time but with the neurologist's help, I can manage the pain so I do most things again now.

My advice.....discuss it. Make as much fuss as you need until someone takes notice and don't let them convince you paracetamol will be sufficient. Hopefully you will start to see an improvement soon.

Love Karen