AWAKE.........

Northerner  great news! LondonLass glad it was a better experience, and fingers crossed fir the biopsy result. so sorry you had to wait so long for the transfusion, and now you have gut problems too! @deClem4 sorry you had such a long wait, but glad LP was in good form. What would we do without him?Any news re your hubs’  treatment moomy? And sorry you are having such a rough time Grogg

Love to all fruit loops xx

Robbo16. Welcome to the group, and hello if you are awake at 4.30am which I seem to be!

. Very pleased you have had such good news.

Dclem4 Sorry you had such a long afternoon. It makes it all so much more tiring. Hope you have managed some good sleep to get some rest, and SE aren’t too troublesome this cycle.

I had an interesting afternoon!  Appointment 2.30, called in about 3.30.  Mentioned to the nurse I was puzzled as I carry a blood antibody card( which I had shown to staff the previous day) but results from blood matching showed antibody negative . Fortunately she was an experienced haematology nurse (turns out she is the manager of the unit). She was also puzzled, and said we would not go ahead until she had rung the blood bank.  They were surprised, tracked the number on my card, and couldn’t understand why they hadn’t picked up antibodies. Said they would need to do a manual screening and  rematch, and depending on results they might not be able to go ahead.  They thanked me for telling them!!  Couple of hours later, they had found the antibodies, rematched new blood, and I was finally able to go ahead.  Got home just before 9pm.  

Ive had about 5 hours sleep, but now wide awake with questions buzzing round my head.  What if I hadn’t said anything?  The previous day when I had shown the card I was told it was all on the system and no need to worry.  What if the nurse I spoke to hadn’t understood the significance and brushed it aside like the previous day?  What if they had gone ahead with the mismatched blood?  Why is the oncology unit doing transfusions when staff are not experienced or trained? Why not get haematology unit to do them?  And why did the screening process not pick up the antibodies which were first detected in 1993, and then again in 2009?  Surely screening should have improved and be even more detailed since then?  So many questions I’m finding it hard to settle my mind enough to go back to sleep.

Anyway, at least I was able to have the transfusion, and my hands feel warm for the first time in about 3 weeks !

Hoping for more sleep soon.

Judith

Hi  I’d been wondering how you were doing and thought I might find you hanging out with the Fruit Loops! 
I can’t believe you’ve continued to have such a rotten time of it all. No wonder you’ve been awake most of the night.

I have no words, just sending you the biggest virtual hug  xx 

Oh  no wonder you’ve been awake and worried, so many questions which are unanswered for you as your mind tries to make sense of what happened. At least you’ve got warm feet and hands but I think I’d feel the same way. Perhaps consider raising it with you bc chemo nurse to reassure you? Sending huge virtual hugs that you feel much better after having it done but what a long worrying and confusing day you had.
I’m up having banana and cereal to take my dexamethasone and ondansetron but will go back to bed as I’ve hardly slept with pounding headache and nausea despite taking a metaclopromide before bed as directed. Not sure if it’s going to be very different this cycle or it’s because I had the Covid jab? The unit I go to is a mixed haematology and oncology ward and I was in a room where I was the only one having chemo, left mostly by myself due to whatever was happening in the other rooms. I know bloods can change quickly but I did say to the nurse to check my results as they seemed to have improved dramatically in 24hrs...he said ‘I suspect it was a test error!’ To which I replied let’s hope it’s not the 2nd one that’s an error or I shouldn’t be getting chemo, couldn’t help myself, it was very cheeky but I think this cancer rollercoaster can make us feel very vulnerable. 
Thinking of anyone awaiting test results for self or family or having treatment/surgery, I know that’s loads of you but finding it hard to scroll through to pick up info. I need a notebook to help me keep track as my brain is so fuzzy some days, not sure that’s all down to chemo though

That sinking feeling when you write a long reply, go to press reply, and the site politely tells you you don’t have the right to reply, and you are no longer a member of the bc group and please reregister etc. etc.  And if it wasn’t for all the lovely people here you wouldn’t persevere...

Morning, Fruit Loops,

what a lot more rain......

but I’ve got washing and dishwashing going on and today is Zoom choir too.

Thinking of all who have any medical ‘stuff’ going on today, hubs is still waiting his scan next Wednesday, with a Covid test Sunday in preparation. We still don’t quite know what time he’s wanted as Urology still haven’t confirmed. But the scan is 12.30. 

Hugs xxx