AWAKE.........

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  • FormerMember
    FormerMember in reply to FormerMember

    Welcome back Cathy () xx

  • FormerMember
    FormerMember in reply to FormerMember

    Well, I'm still here! Hotel NHS can't get rid of me that easily, despite the largely rubbish food!!!! This is their version of a cheese and pickle sandwich:

    I seem to remember making something like that when I was about 4! 

    Anyway! I escaped late on the 23rd after the usual wait for pharmacy, and spent most of the day yesterday sleeping and/or coughing! Feeling better today though and looking forward to a quiet day.  Thanks to Sal ( ) for being  fab friend and keeping contact with me and filling you all in where necessary! 

    I went in due to a temperature on 16th  as we are told to do (I actually made 38.9 on the Tuesday, and I NEVER get temperatures normally!) and then spent the week being stabbed, prodded, scanned and filled with drugs of various varieties! My discharge report said that I had pneumonia, Type A influenza (despite the jab!) respiratory failure and haemmorhagic brain mets. I'm quite sad that they missed out Ebola as I'm sure I had that too! 

    Reading that, not really surprised that the doc on the first ward I went to took me by the hand and told me that I probably wouldn't survive the admission! Well, he was talking to the wrong person, but we had to make some awkward phone calls to my son, my sister and my Mum, only to tell them 24 hours later that actually, reports of my demise were somewhat premature! The consultant on the respiratory ward looked very confused and said 'no, we'll have you home by Christmas' and didn't add 'in a box', so that was positive! 

    As Sal said, they found brain mets whilst I was in but I've probably had them for a while without symptoms - te doc scanned my head as I had a really bad headache, but I think that was due to the flu rather than to the mets themselves. It disappeared after 24 hours, and has been fine ever since. Quite why they have bled is another thing. Apparently, they are unusual and atypical in form - now why doesn't THAT surprise me??? Joy

    I'm having another scan on NYE to see what they look like then, then they'll make decisions on whether to restart the chemo and the anticoagulant injections. Obviously, the spread is not something we wanted, but hey, it is what it is so we shall see what difference it make to the overall progress of the bloomin disease! 

    The worst thing was, I missed out on my Christmas ballet weekender to Leeds! However, I still have tickets booked until September and I I've got a 50th ballet Gala to go to in Leeds on 4th Jan, so hurrah!!! 

    Right, back to watching Christmas films and eating rubbish! 

    Big hugs to everyone - hope that everyone enjoys their day, however they are celebrating! 

  • Merry Christmas to all you wonderful people. I'm not here often but will never forget what you did for me. Special thanks to sal, optimistic,joedec, snowy mum, and so many more. Would also like to send all my love to anyone newly diagnosed or waiting for results. Someone said to me a long while ago now that struck a chord. They said this Christmas will come and go it wont be the same but it wont always be this way just remember that. Please remember that we are all different and whatever happens there is no right or wrong way . Say this to yourself. YOU ARE DOING THE BEST  YOU CAN!!!!  My heart goes out to you. Love to you all. Michelle diagnosed 2015. Xxxxxx

    Peace and plenty. Xx

  • Sea spirit too. Xxx

    Peace and plenty. Xx

  • Welcome back xx

    margaret 

    One step at a time and ...Breathe !
    xoxox
    Margaret
  • FormerMember
    FormerMember in reply to Northerner

    Love to the fruit loops who have been poorly.  It's a day to be thankful for good fortune and I've had more than my fair share of that. Special mention to Jenny (grannylara) Sal (londonlass) weeblemum,  jess1111 and annejac. Hope everyone gets time with their nearest and dearest today. For those who can't for various reasons,  know that they and the fruit loop family love you.

  • Thankyou love to you at Christmas and New Year it's lovely to see your happiness now x

  • sending you love so glad you're home x

  • Wonderful to see you back Hearts , you amazing lady Hearts️Hearts️

    Happy Christmas all Fruitloops xxxxx

    Onwards and flatwards (don't do hills) and keep walking if you can!

  • FormerMember
    FormerMember in reply to FormerMember

    Isn't it wonderful that, despite all evidence, fruit loops can find humour in anything