AWAKE.........

Hi. , don’t apologise we all have our down times and when we get news like you have it’s hard to see anything worth smiling about! What did your Oncologist have to say about the results? Is this normal, to see no progress at this point? Or does it just take more time with some people? Could they offer a different combination of drugs! 

Don’t feel you need to answer any of those questions but if you feel you want to talk, we are all here to listen! 

I think the best thing you can do right now, and I know it’s hard, is to ENJOY Christmas with your girls! Make it as Special a time as you can safely manage! Enjoy watching their little faces light up on Christmas morning when they see Father Christmas has been! 

Festive times are hard for all of us wherever we are in the treatment/diagnosis of Cancer! It’s perfectly normal to be thinking ‘will I be here next Christmas’ or ‘how many more Christmas’s will I be around to enjoy’ BUT the truth is NO ONE knows the answer to those questions. The horrid reality is that EVERYONE Cancer or No Cancer is going to die at some point! But we can live in fear of that and waste the time we have, or we can just get on and live, make the most of every moment! I know that’s not easy and I struggle with it most weeks, side effects from drugs and the Cancer itself makes life tough sometimes! But I am still here and so are you!! Live for today, tomorrow isn’t promised for any of us!! Sadly after a Cancer diagnosis we are suddenly aware of our mortality, but somehow we have to change that around to be a good thing, good in the sense we have had a hard lesson in stopping and taking in the good in each day, noticing the small things in life, enjoying things that we are lucky to have, friends, family, pets! 

Its VERY hard to see any positives when we feel down....I know! But just look at your two beautiful girls, they must be enough for you to Smile and see how blessed you are! Take care Hun, allow the tears to flow when you need to, but try and Smile if you can too! Sending you.......

You are NOT alone Hun! We are here for you! Sal xxxx

LondonLass thank you for being so kind and understanding! I know I have many things to be thankful for...and it is good to be reminded of that, so, thank you!

I don't mind at all to answer the questions! In my case, the aim is a good partial remission rather than complete remission, but I am a bit disappointed because at the halfway point it is apparently normal to see progress. My oncologist thinks it may be that because of my spleen problems and all the associated, that my body hasn't responded and the hope is that it will now go better. Fingers crossed....

I'm also feeling a bit down I think because I've had a chest infection and although it's getting better I'm still struggling to sleep because of all the coughing and wheezing! I sound like a broken down steam train, ha... But lack of sleep is never particularly helpful, although you'd think I'd be used to that (the girls have done their best to prepare me, let's say!).

Hope you are doing ok too, as ok as possible xxxx

Morning everyone

Special wishes to Cathy  sorry to hear you are in hotel NHS again thinking of you.xx

so sorry , snoweys mum , we always remember those precious first loves

life is not measured by the breaths we take , but by the  breathtaking moments .

look after yourself ...me x

Morning all....

thinking of all who need hugs today and sending some....especially to  and  today ps, have they mentioned a stem cell transplant, Jess? As there’s a friendly group for that too

hugs xxx

Lovely to hear from you and sorry you are having such a difficult time at the moment.  

Also wishing a good recovery and escape from Aneurin Bevan’s hotel.

I’m still in my dressing gown.  Been up since 8.30 and will wash and dress soon!!!!

Hey all 

Groggy first off coal flavoured cheese thst sounds nasty mg friend said she tried chilli cheese af Market in Manchester on Monday was pretty spicey. 

London lass lunches and coffee shop is ng ideal day ir evening meal and I'm 32 waiting dor. Mg friend snd her little oneand off we go Costa they hsd half price chocolate orange muffins yesterday they were amazing

Hey jess we haven't met id you know what i mean hahaha I'm Cazzy 

Xxxxx

moomy, yes, they have - but it would have to be a donor transplant in my case because the lymphoma is in my bone marrow. But I have an appointment tomorrow and the oncologist is going to discuss the options in more detail. I was just so hoping that the chemo would be showing some effects, but not yet...!

no, we haven't! But nice to "meet" you now

Hi , 

it’s not a decision to be taken lightly but is doable and there are a few folk who still post following their Allo (donor SCT) plus one regular carer (me) as our lass went through it in 2011 and is still here, working and travelling the world!

hugs xxx